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nocturnal seizures
Fri, 03/24/2006 - 14:21Hi all
I hope that you are all ok
I have a question that I hope you don't mind me asking.
When I have a nocturnal seizure I find that it take me 3-4 days to recover. I am physically and emotianlly exhausted. The right side of my ribs hurt and and so do the muscles in my neck and so does my back.
I find that when I have a day time seizure I do not ache quite as much as I do with a nocturnal and it takes me less time to recover.
I was wondering if anyone else finds that it takes them longer to recover from a nocturnal seizure then a day time one. If so could they think why this could be the case.
Sorry if I am not making much sense.
Thanks from
Honeyber
Comments
Re: Re: nocturnal seizures
Submitted by nancygacharna on Sat, 2006-03-25 - 13:09
Well..............I was diagnosed 18 months ago at the age of 28. So far I have had about 8 nocturnal seizures (only type I seem to have) and my husband describes them to me like this: first of all the noise that I make with the back of my tongue is very scary. I shake, bite both sides of my tongue, and they usually last about 3 to 5 minutes. The doctor said I should be turned to the side, to prevent aspirating blood and saliva. Even if he tries, he can't seem to get me to wake up, and the next day I am very sleepy, tired, and feel like I was beat up. My neurologist said I have grand mal seizures, but gave me no explanation as to why I seem to have only nocturnal ones.
Hope this helped,
Nancy Gacharna
Re: Re: Re: nocturnal seizures
Submitted by kareterra on Wed, 2006-04-05 - 08:00
hey, Nancy!
this sounds JUST LIKE mine for the most part. I started having seizures 14 years ago - started with partial complex that evolved into grand mal which then evolved into nocturnal. Given my druthers, i would take the nocturnal any day -- especially now that they are the ONLY type I have. My husband says I make a really weird noise - the cross between a groan and a snore. hmm. sounds attractive. the last time all i could remember was shaking like i was REALLY cold and i couldn't make it stop. I take a combination of meds and am now being considered for the vagus. not sure how that's gonna go - they're supposed to be for partial complex, what i'm having sounds more like tonic-clonic. We'll see.
I think alot about what my husband must think - if he DOES think anything about having to share a bed with someone who may wet it at any given moment. ha - we've even considered one of those really good but really expensive tempur pedic mattresses for my husband's back - but if i wet it (and there's a good possibility that will happen somewhere down the road) it would be like a giant sponge. gross. we've tried the plastic bed covers, but they were so hot i wasn't sleeping, so that was no good. we've gotten one of those baby mattress pads and they're not so bad. afterward all i want to do is sleep. I usually have a fever and a headache and generally feel like i've been hit by a truck. But, since I've run the gamut of seizures - I would have to say that the nocturnal are the least invasive to your life. Hope they stay that way for you, too. Since mine have been nocturnal for over two years, the chance of going back to having them in the day is just about nil. I drive all over the place, swim with no fear. Karen
Re: nocturnal seizures
Submitted by Anonymous on Sat, 2006-03-25 - 12:30
Is there anyone who can tell you what happens during a seizure at night? Some people find that videotaping seizure at home let's them see what kind it is, what happens, how long they last, and how many occur. A person may feel different after a seizure if they are different kinds than daytime events or if have more than one. Epi_help