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How many of you work and what do you do?

Wed, 10/11/2006 - 12:37
I have been diagnosed with E for 9 years but had them since I was at least 7. I have worked since I was able to work. Part time as a teen-ager. Then when I got married at 18 (8-S) I worked full time and have sine then, besides a year for school. I am to the point now, though, that I feel I am almost not able to anymore. I am having a hard time dealing with this. I'm being really hard on myself my husband and family says. I know I can't help having E. I know I have tried to work all these years with it. But now that is it getting worse and I am on more meds , I don't think I can hold on much longer. I feel so guilty about it. I'm messing up at work, and when I do that at my job, its a big deal. I don't know, I guess I needed to vent. Thanks for listening. (((Hugs)))

Comments

Re: Re: Re: How many of you work and what do you do?

Submitted by tbaldwin on Sun, 2006-10-29 - 23:10
It looks like you have a good set of ideas, the way medications effect you negatively over time and that the smaller amount of seizures may not need to be cared for as those with high frequency of seizures. I live in Baltimore, but work in Collage Park. My first seizure was in 1973 when I was 17 y.o.. I was diagnosed with Complex-partial seizures, that were Intractable(resistant to care)& Idiopathic (unknown cause). I've tried 15+ AED, I went to work at FDA after my neurologist kept prescibing meds. that were approved, so. Currently, I'm taking Trilepal and zonisamide(generic version of Zonegran). My E-mail is tbb1@prodigy.net. My neurologist is Dr. Allan Krumholz, at Univ. of MD Hosp.. I've been on alot of meds. but none has completely, I take alot of meds., I had my L. Temporal lobe removed in 1996, my rate of seizures was reduced by 50% but before that I was having 1 seizure per month afterward it was 1 seizure per 1-3 month (that is only the seizures that I'm aware of, many more accure without me being aware of them, Complex-partial =unconsciousness).

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Submitted by Lizbeth on Sun, 2006-10-29 - 13:55
I am 43, diagnosed with simple partials about 8 months ago. I work as a manager in a large department for the City where I live. My worst problem so far has been side effects from medication. My neuro says we need to get the seizures under control or it will certainly develop into something worse. Currently have a cold, dead feeling in various parts of my body on the right side only - sometimes arm, leg, face - a couple of times drooling - ick! Also funny smells and tastes. I was on Keppra initially, kept increasing the dose to 2250 mg per day. That was too much. I was really dragging - could barely work 40 hours a week, and I usually work more than that. Also balance and coordination problems. Told him we had to do something different. Now I am down to 1500 mg Keppra per day, plus 125 mg Lamictal, which we will continue to increase. At this point I feel like I can function normally. Still having seizures - frequency and intensity vary, but I can't tell much difference from before we started the meds. Who knows, though? Maybe it would be worse without them. PS - My initial diagnosis was TIA (mini strokes) and I was scared that a major stroke was next... I guess I was kind of relieved to have seizures because it sounded better than the alternative...

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Submitted by wflisa on Sun, 2006-10-29 - 19:31
Hi Wendy, Venting is fine here. Come back and do it whenever you need to. I vent a lot here and on the phone with the local Crisis line. I am convinced that my "E" was mostly due to stress. The last job I had was in Mortgage Collections. Any collections job is bad, but this one was really bad. After just over 11 months on the job with a very disrespectful supervisor, I called in sick one day and was told if I did not come to work that day, I no longer had a job. I said "fine" and hung up. I have not held a job since then and that was November 2005. Up until late May of this year, I still tried looking for a job. Now I have quit looking. The side effects from my meds are making me virtually unemployable all by themselves. If I may suggest; please do not feel guilty about messing up at work. You have a medical situation that you do not have control over and your managers cannot control it either. What is there to feel guilty about? w f lisa

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