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Feeling strange
Wed, 02/09/2005 - 21:03Comments
RE: RE: RE: RE: RE: Feeling strange
Submitted by LeeMc on Fri, 2005-02-04 - 20:07
Dear Avid,
Lee here - dropping in to check on everybody! I think there are many of us who may have had small or minor incidents as children or young adults that we not only survived through but thrived through. Was it epilepsy then? Who knows? It may have or not. It might simply have been how we reacted to the hormonal changes taking place in our bodies - or the emotional changes and reactions to whatever was taking place in our lives. We may have continued on forever like that and never knew if anything was ever wrong - or not.
But something else happened to us. We brused our brains in some way through accidents or because of abuse or whatever.....and it made all that stuff mean something different. It also meant that we needed help to cope with it because our own brain could no longer balance itself.........and we are epileptic....whether it is inherited, acquired by injury or by illness - whatever - we got it now.
There is nothing to be ashamed of or angry about. It has happened and we go on from here. What happened back then may even be distorted or exagerated in our memories based on our more recent experiences.
I too am looking forward to a total re-evaluation of my condition and I do hope that surgery is looked at as an option. I do not want anything ruled out - I've done the medication thing for over 30 years and I am suffering from side effects from that that I can recover from if I can get off the meds. I am not too old to be written off - and I am too young to give up....so look out world - here I come again!
Love to you all.........................Lee
Dear Avid,
Lee here - dropping in to check on everybody! I think there are many of us who may have had small or minor incidents as children or young adults that we not only survived through but thrived through. Was it epilepsy then? Who knows? It may have or not. It might simply have been how we reacted to the hormonal changes taking place in our bodies - or the emotional changes and reactions to whatever was taking place in our lives. We may have continued on forever like that and never knew if anything was ever wrong - or not.
But something else happened to us. We brused our brains in some way through accidents or because of abuse or whatever.....and it made all that stuff mean something different. It also meant that we needed help to cope with it because our own brain could no longer balance itself.........and we are epileptic....whether it is inherited, acquired by injury or by illness - whatever - we got it now.
There is nothing to be ashamed of or angry about. It has happened and we go on from here. What happened back then may even be distorted or exagerated in our memories based on our more recent experiences.
I too am looking forward to a total re-evaluation of my condition and I do hope that surgery is looked at as an option. I do not want anything ruled out - I've done the medication thing for over 30 years and I am suffering from side effects from that that I can recover from if I can get off the meds. I am not too old to be written off - and I am too young to give up....so look out world - here I come again!
Love to you all.........................Lee
RE: RE: RE: RE: Feeling strange
Submitted by AvidRunner22 on Fri, 2005-02-04 - 09:41
what's funny to me is that when I had my head injury that caused a grand mal in July, it was only afterward that anyone ever suspected I might have epilepsy. I was unconscious for 16 hours and I have had a lot of deja vu since this happened and dizziness, along with these suspected petit mals. I get these pulsating headaches in my temples also that spread to other parts of my head sometimes. But even before this happened, years and years before it happened, back in my teen years and earlier, I had a lot of this deja vu stuff, and I never thought anything of it and I never said anything to anyone about it. Back in the day, whenever I'd be reading something the words be flashing, like they were lit up or something. Has that ever happened to any of you...? I was diagnosed around when I was 9 or 10 with ADD/ADHD, I had struggled in school for a long time. And in my middle teen years, my grades got much better and I didn't have any problems. Now that I look back on it, I wonder if I had a childhood form of epilepsy and was misdiagnosed. I suppose to me the kind of things that happened doesn't seem to add up. I was always fidgety, and I still am, and they diagnosed me with hyperactivity. And my teachers told my parents they thought I had a learning disability because of my grades and because I always was "zoning out." I could never sit still either. I still can't...Especially with the deja vu's and the 'flashing words", somehow I have a hard time believing it was just what they said it was. I have a larger than average blood vessel in the back of my brain, I am still wondering if that contributed to some of it.