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Advise Sort
Sun, 05/30/2004 - 05:27Topic: Family & Friends
Hi, I was first taken in a seizure 30-Jan-00 but never knew what it was, no doc has diagnozed me as having epilepsy. Yet I started taking my medicine 02-Sept-03 (Carbamazipine & Phernobabitone) I have recorded great success nonethelesss. Nowadays it all starts with things like stress at work and I would become uncontrollable and easily irritable. I rarely convulse. I may need advise from members on how best I can have my situation addressed. Expert medical attention still far away from being a reality in my third country ZAMBIA
Comments
RE: Advise Sort
Submitted by seeker2 on Fri, 2004-04-30 - 00:06
Some don't want to tell you Tibet2.They have epilepsy,accept it not bother about it,build a website that tells you all about their life,their friends and family.But they don't tell you about the society they live in,how they live with a myth they if they wanted to they could change,nor tell you about epilepsy.How it is seen in their society to have epilepsy.Cope with it day to day.Never mention they want change-in their lives or the people's lives that live in that society.They accept the way things are,because it suits them.More content to belittle the efforts of others who do care.How they want change,and do talk about epilepsy whilst doing so,have tried to help others.Two true examples are posted below.The myth they could destroy they don't want to.They expend effort on not doing that,but turn it outward and use it in other ways.They use it to help others who created a myth,have lived their lives as a myth .To get them so badly what they want.That's the continuance of the myth....the help of others to help them perpetuate that myth for their own ongoing ends,at the expense of others ....Who tried to dispell a myth regarding themself,but were judged and not given a voice.Think about that-Chad has,and good luck to him.You and I are American,live in a society supposed to be free.Do we.Do you when people have to post for help about seeking help for a relative who needs help in obtaining meds for a nephew,or a mom who wants to know what TCM stands for.Cause just maybe it could help her son,and stop him being put through surgery she agonised over him having and voices are silent.Both American's that posted those requests.Both had talked about epilepsy in their lives that are not based on myth(thank godess for that)both had helped others doing so.( yea I know this, I read the mail from them that tells of the cost in creating that myth,to get them what they wanted which was kids) and are ensuring it will remain that way by silence whilst others speak for them ,and maintain the myth....
RE: Advise Sort
Submitted by cmushibwe on Fri, 2004-05-21 - 10:00
Hi Seeker2 & Tibet2,Hopefully you've been doing so well so have I been. The only problem here is the shift in my current work schedule. In less than 5 days I will be out of my station and this is really gettin' me to think like I may not organize the forum. Recently I receiced some material from the BEA-Connect, besides the weekly online newsletter. This is helpful. I will have to adjust my timings so as to meet the wonderful people like you on this site,Bye for now,CHAD
RE: Advise Sort
Submitted by tibet2 on Thu, 2004-04-29 - 11:49
chad, i hope you can work out the details of the forum and traveling for work. your plans for the forum sound wonderful. you will be able to help many people. epilepsy is held in myth many places. i don't know of any place that doesn't have misconceptions about epilepsy. i think the myth about epilepsy varies depending on where you live. the myths tell you about the society they thrive in, but they rarely tell you anything about epilepsy.