What if you spend a week in video EEG monitoring and can't record a seizure?

So how did it go?  My daughter is 17 yrs and we are waiting to get her in for her VEEG.  She has tonic clonics and has been on a few different meds....nothing seems to be working.  After our last event, three seizures in 6 hrs (the worst yet), I have started to get kind of stubborn with the doctors.  She has had 3 EEGs and 1 MRI, I don't know what to think.  Yes, the seizures affect her quality of life, but so do these meds.  They make her seem drunk all the time, I hate this for her!!!  Hopefully the VEEG will help.  Let me know how things went for your son?

Dragool - the VEEG experience was really not bad for us. My perspective is from the mother of a child who went through it, though. The EEG itself should be a lot like the others you've had, though they may use a stronger glue to last several days - not sure. It may take a while to get used to being on video all the time, but you'll get used to it. You get to "unplug" yourself from the wall as needed to walk around and go to the bathroom (off camera). You will get baby wipe-type things to clean up with, or even a hand-held shower nozzle (to keep your head dry). In the pediatric unit, it was recquired that someone go to the bathroom with you or stand outside the unlocked door in case you seize in the bathroom. The caregiver with you can generally get a food tray when you do for an extra charge. I did that occasionally, but often went down to the cafeteria to get something to bring back to the room. I also took microwaveable meals like the cups of stew to save money at lunchtime (when the cafeteria is busiest). Also protein bars for breakfast. I assume your room would have a fridge. We had a microwave and coffee pot available at the nurse's station. We took a laptop for e-mail, games, and DVD's. There was also a DVD player in our room. We took lots of DVD's, books, computer games. I also took crochet to work on. We were allowed to use cell phones in our room, but the reception in the building was awful. The second time, I thought ahead and took a prepaid phone card for making calls from the room. Another very helpful thing was a little folding luggage cart to carry all the stuff we brought because it was a long, long walk from the car to the room. Earplugs and maybe a white noise machine are helpful if you are a light sleeper. Also, it will probably not be very dark in your room, as you will be on camera. Nurses took my son's vital signs 2 or three times a day. Also, you will have a small IV line in your arm all the time for any injections necessary. The nurses at our center were very nice, and would bring us drinks, clean sheets, etc when needed. The rooms were all private, and the caregiver sleeps on a flat-folding recliner (not comfortable!)The doctor came in every day at about 11:00 AM to see how my son was doing and to update us on any tests he'd had, like his MRI. We didn't get bored, really. The hardest thing, as I alluded to in the original post, was the crazy waiting and hoping for a seizure, yet dreading it, too. And the disappointment of going home without getting one recorded. I read that 85% of people will have a seizure within a week when taken off meds. We were just some of those unlucky 15%. If you have any particular questions I didn't address, post again or email me - I'd be happy to tell you more about it. I assume you would be in an adult unit, which would be different than the pediatric one we were in, though.