What if you spend a week in video EEG monitoring and can't record a seizure?

Blondie46- Thanks for the encouragement. My son is also quite tired and slow from his meds. He has a terrible time remembering what to do for school, what to bring home, etc. School is stressful for him, especially since he has had two grand mals at school this year. But he has a pretty good attitude about it. I don't know how long that will hold up, though. We have been dealing with this for 6 years. I hope you have a better experience when you go to the different facility. We were quite please with our staff, except that the doctors without exception seemed to want to rush off before I could ask all the questions I wanted. Keep trying, because the more you know about your daughter's seizures, the better you can take care of it!

I know it must be frustrating to go through this test with no new information. I am just beginning on my ventures to find out why I had two clonic tonic seizures almost exactly a year apart and at my older age too! It really breaks my heart for parents and children dealing with this. I can not understand anyone in the health field being anything other than compassionate, caring, and above all, willing to spend time to answer all and any questions! I worked in a similar field for 25 years and it was an understood code that if someone was not kind and compassionate, they were unpopular among their peers and asked if they needed to choose another profession. While searching for some info, I did my own research on Duke Medical and the clinical trials they have concerning epilepsy. I know this may not be an option for alot of people. Some of the clinical trials will pay for expenses if you are a participant. I have also heard the Epilepsy dept. is wonderful with chidren and young adults. My good friend moved to North Carolina, because her young son had cancer. The state they where living in just did not provide much support for patients or parents. Unfortunately, their son passed away. They have stayed in N.C. because they have found great support and hope, along with starting a camp for children with cancer. I know this is off subject, but I feel going through the tests can be quite trying!                                                                            

am parent of 18 yo diagnosed approx 3 months ago. James is 18 yo freshman in college in austin,tx.he hid seizures he claims started as junior in high school.was star baseball pitcher, etc..and at school his roommate told his parents just before thanksgiving 09, then we started the testing..we are doing a video eeg next wed-sun..will let you know., he is on keppra xr 1500 mg 1 x /day..and its helping quite a bit, except his whole college world has changed since alcohol is mostly off limits..another life challenge. He is growing up fast, his 2 sisters also at college in austin so that helps a little, but next week sounds like a real challenge.. Liz (wife) and I are both going to be there ..so guess we will make best of it... Jimmy B