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Anyone Else??
Mon, 08/28/2006 - 22:04I have been having seizures for about 10 years now. I am 32. Everyone else seems to know the type of seizures they have and why they have them, etc.
I've been to several different neuologists, I don't like any of them, but they say I have Idoiopathic (excuse my spelling) seizures, meaning no one knows why I have them. I just started having them out of the blue. No doctor has ever told me what kind of seizures I have or what part of the brain they come from or any of the stuff you guys talk about on here. They act like I just don't need to know or wouldn't understand anyway. I've only had maybe half a dozen grandmal seizures, but I have these episodes (especially when I wake up or am very sleepy) where my right hand draws up and I can't control it and I feel scared or just plain bad all over and it usually makes me cry. I don't pass out from this. It might be better if I couldn't remember the feeling I get or the people staring at me. Last week when this happened, the muscle in my arm was "pulled" from this. It hurt so bad. It doesn't usually draw up that hard. Is this a seizure? Its been happening since the first grandmal. It usually happens when I start my period too. (or lack of sleep) When I have had a grandmal seizure, it always started like this, with my hand drawing up and it would move up my arm and when it got past my elbow it would be a grandmal and I would pass out. I would have this horrible dream that my body was melting. Its the worst thing I've ever experinced.
I hope I haven't ask too many questions. If someone is similar to any of this, I would appreciate a response, as I feel alone in this.
Thanks,
Beth
Comments
Re: Re: Re: Anyone Else??
Submitted by Bloodyrose on Thu, 2006-09-21 - 16:41
Awww. I know what you mean. I've been called crazy numerous times because of seizure symptoms. It's so hard for people to understand if they don't experience it for themselves.
We're all here for you, hon, if you want to talk about it. Sometimes all it takes is a friendly ear to make it seem better. :)
Re: Anyone Else??
Submitted by susieq on Wed, 2006-09-20 - 16:45
You mention one interesting thing - "when I start my period too" It took doctors (and me) 5 years to figure out what type of eplipesy I have and 14 yrs to figure out the cause of my complex partial seizures. Hormones!! I finally figure this out after my first pregnancy - period=auras & seizures either night or day - pregnancy =
seizure, seizure, seizure - from this I could trace my auras & seizures to my hormonal cycle. (don't worry - my daughter was born perfectly healthy and is more healthy than any child I've known)
Unfortunately, they've never come up with a treatment for this. By the way - I didn't start my period until I was 17, interestingly enough, same age as seizures started.
Re: Re: Re: Anyone Else??
Submitted by fzMousie on Mon, 2006-09-18 - 21:58
Men fix things, Beth. My husband wants to fix me. They need to fix, I think it is part of their nature. My mother warned me about the male tendency to need to fix. Both my sisters warned me about it. Pick any relationship book up and somewhere the author will mention the male need to fix things to make them good for their wife or girlfriend. I try to tell my husband that my doctor treats me differently when he is there as opposed to when I go alone. All he can say is "Well, get a new doctor." Sometimes we just need a shoulder and they hear that need as "Honey, fix it." Good luck. (hugs)