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Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by grason p on Wed, 2009-09-23 - 17:33

Hey all, I had my first seizer (grand mal) August 20th; what a strange experience.  I was asleep and woke up with my wife, dad, and paramedics surrounding me and did not have a clue what was happeing.  It took about 6 hours before I was sort of back to normal.  All tests (CT, MRI, and EEG) came back normal.  I just had another siezure when I was napping on Sept 21st.  My wife found me both times-the worse thing about it is she is over 7 months pregnant now.  The out patient DR. started me on dilantin on the 21st.  It is my third day taken it with no ill affects.  I see the Neurologist again tomorrow.  I do not do drugs, I only get drunk 3 times a year, and may only have a coffee and a tea a day if that.  I have no idea why I had the seizures.  I have to thank everyone for all their comments on this web site, as it puts me to ease a little, that I know I am not the only one going through these experiences.

 New to the Seizure thing.

 

Hey all, I had my first seizer (grand mal) August 20th; what a strange experience.  I was asleep and woke up with my wife, dad, and paramedics surrounding me and did not have a clue what was happeing.  It took about 6 hours before I was sort of back to normal.  All tests (CT, MRI, and EEG) came back normal.  I just had another siezure when I was napping on Sept 21st.  My wife found me both times-the worse thing about it is she is over 7 months pregnant now.  The out patient DR. started me on dilantin on the 21st.  It is my third day taken it with no ill affects.  I see the Neurologist again tomorrow.  I do not do drugs, I only get drunk 3 times a year, and may only have a coffee and a tea a day if that.  I have no idea why I had the seizures.  I have to thank everyone for all their comments on this web site, as it puts me to ease a little, that I know I am not the only one going through these experiences.

 New to the Seizure thing.

 

Re: Seizures During Sleep

Submitted by E_Loner on Sun, 2009-08-30 - 13:11

I have nocturnal E. I had been thinking I had one or two szrs a month. I deicded to get a camcorder. I found I was having more szrs than thought. To all with nocturanl Es I advise running a camcorder for about two months and check each day. It will take about 60-90 minutes to check. You may be suprised.

Mornin.., I suggest stop the dope and booze and get your sleep. That may be what helps. I have been on Neurontin, and Flebatol. My doctor added Valpro and for the last two months no nocturnal szrs. Two months is nothing to get cheerful about.

Good Luck, E_Loner

I have nocturnal E. I had been thinking I had one or two szrs a month. I deicded to get a camcorder. I found I was having more szrs than thought. To all with nocturanl Es I advise running a camcorder for about two months and check each day. It will take about 60-90 minutes to check. You may be suprised.

Mornin.., I suggest stop the dope and booze and get your sleep. That may be what helps. I have been on Neurontin, and Flebatol. My doctor added Valpro and for the last two months no nocturnal szrs. Two months is nothing to get cheerful about.

Good Luck, E_Loner

Re: Seizures During Sleep

Submitted by Terribee on Sun, 2009-09-13 - 18:40
Hi. I'm 39 and was diagnosed with TC nocturnal seizures at the age of 2. I've discovered the same thing--sleep, proper nutrition, and no alcohol have kept my seizures somewhat controlled. I take a Lamictal, Keppra combo--it's has controlled my seizures the best.  Unfortunately, I still experience the out-of-itness a bit the day after a seizure. But on the up side, I am a teacher, can drive, have two children and a loving husband. Things will work out for you I'm sure. I'm curious--do your seizures get worse before and during your menstrual cycle? 

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