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Abnormal EEG, no seizures
Thu, 06/22/2017 - 13:29Topic: Parents & Caregivers
My son had an eEG a few weeks ago, dr said the eeg is abnormal but no seizures. He had several sharp spike and wave episodes generalized. Mainly in his sleep. I understand these are not actual seizures. She did put him on medication. I guess I'm just confused on what to tell other drs, schools etc. anyone have a similar experience?
Comments
There is many reasons for the
Submitted by Lwid510 on Thu, 2017-06-22 - 22:12
There is many reasons for the EEG, mainly he was recommended by a neuropsychologist after she saw severe differences in testing scores. They have him as cerebral dysfunction. She said he had seizure like activity with the sharp spikes and waves but no actual seizures. I was just wondering if anyone had a similar experience
There is many reasons for the
Submitted by Lwid510 on Thu, 2017-06-22 - 22:29
There is many reasons for the EEG, mainly he was recommended by a neuropsychologist after she saw severe differences in testing scores. They have him as cerebral dysfunction. She said he had seizure like activity with the sharp spikes and waves but no actual seizures. I was just wondering if anyone had a similar experience
most people don't just
Submitted by Amy Jo on Thu, 2017-06-22 - 19:44
most people don't just schedule EEGs for their kids without some reason.... and while EEGs are often uneventful even when one has epilepsy, there are plenty of seizures that can happen that one doesn't recognize as seizures when not connected to an EEG. so the history and EEG together mean something. so you are leaving out a significant part of the story but maybe you don't know what's significant.many people are so uncomfortable with epilepsy that docs don't always say explicitly, 'you have epilepsy.' some people were told they have a seizure disorder but don't think they have epilepsy (ummm, there are seizures that are not from epilepsy but 'seizure disorder' is doublespeak for epilepsy when combined with epilepsy medications). ASK what the diagnosis is so you can start educating yourself on his issues. one should not go on medication for seizures without some real belief that treatment is called for. for what it's worth most people with epilepsy related discharges on EEG have epilepsy. so if the doc thinks he has epilepsy, ask what they think is going on, what kinds of seizures, is there a specific kind of epilepsy, what's the prognosis (e.g. limited type or potentially lifelong), etc... not all neurologists are right for all families (communication styles differ and other ways personalities don't mesh), it's okay to get a second opinion (if so, pick someone well regarded, ideally an epileptologist, to make it worthwhile).