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Hi! I am new to the site. My 8 year old daughter has epilepsy. She has the small seizures. (When she talks to you she will roll her eyes.) Well it kept getting more frequent so we took her to the doctor in feb. 2005 for it. They sent us to Childrens Hospital. They did a EEG on her and found very abnormal activity. So she got put on med. (Lamictal). She has them every now and then. Well last tuesday morning my girls were getting ready for school, and all of a sudden she fell in the floor with a full blown seizure. We called 911 and by the time the ambulance got here she had come out of it but they took her in anyway to be checked out. She hit her head and had a big bump on it. They ended up uping her medicine. (They called children's and talked to them). So far so good. We go back to childrens in Dec for a check up to see how she is doing. It really scared me and my husband. Anyway thanks for reading.

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Re: New Here

Submitted by Essie on Wed, 2006-11-29 - 03:18

Hello there! I'm sorry for everything your daughter is going through. My son too has epilepsy (he's turning 6 early next year), and he's also on lamictal. He got atonic, myoclonic and absence seizures. The absences are the most. After he started the meds, it first got worse, then better. I was warned that with changes to their body and brain, the meds may need changing. Either the dossages or to a different type. I've also learned that for my son's type of epilepsy (Juvenile Myoclonic Epilepsy), the tonic-clonic (what your daughter had on that Tuesday) will start about 2-4 years after the other seizures started. It's the way this type of epilepsy progress. It's unfortunate, but maybe also what's happening to your daughter? Either the meds wasn't doing their job properly because her body and brain changed due to growing up, or the epilepsy is taking it's natural course (as natural as that can be!). I'm totally scared for that first tonic-clonic, so I really feel for you and your daughter. I think you should trust the higher dossage, and give it a chance to stop anymore of these tonic-clonics. They say lamictal is good for those types of seizures, so I hope you won't have to witness another one in your daughter. Good luck! Essie (mom to Nian, 5 and Meonie, 3)

Re: Re: New Here

Submitted by jh12918 on Wed, 2006-11-29 - 09:26

Thank you for repling to me. I had never in my life been as scared as I was that day. And so far so good. I did not know that it would start up being bigger seizures until I read your post. She has been doing the smaller ones for about 2 years now. Thank you so much for that information. Do you know where I could read up more on this type of tonic-clonic she had? Or information on the 2-4 year time frame? I sure would apperate any info I can get. My husband and I want to learn about it as much as we can. Thank you so much, Jeana

I am also sorry to hear

Submitted by mama bear on Thu, 2006-11-30 - 02:22

I am also sorry to hear about your daughter. I am 2 weeks in with my 2 1/2 year old having tonic-clonic seizures in clusters all of the sudden. Funny enough Essie (comment above) is also the person that has been assuring me through this. wwwepilepsy.com talks a bit about tonic-clonic and if you Google tonic clonic seizures tons comes up. I have been reassured by doctors as long as the seizures are short in duration (one to two minutes) they are not very detrimental to the brain. I know that Doctors give the 5 minute rule as far as calling an ambulance, but because my guy is so young I have a 2 minute rule instead! Then if the ambulance takes 4 or 5 minutes they are still not seizing for 10 minutes or more! Sometimes after a tonic-clonic the person will not breath for a minute or so, try not to panic, their color may change. I felt we needed to update our C.P.R. immediately. The Doctors assure me that the brain will kick in and get them breathing again. I just wanted to let you know so you can stay calm. So far my son's cognitive capabilities have not changed, and he is considered "normal" developmentally. I also wanted to mention that the postictal (after seizure) state is always different for my son. Sometimes he is not cognazent for at least 5 minutes, trying to focus his eyes and head rolling around all woozy. Ounces he instantly tried to get up, I try to discourage that because their bodies don't have the strength or motor coordination back immediately and they can hurt themselves. Sometimes he will instantly go into a deep sleep snoring because his little body is pooped! Just a few notes in case it happens again so it isn't so scary. I REALLY relate to that day being the scariest of your life. (if you want more info read Mama Bear's blog) I hope you don't have to go through one again. On that note the meds my son have started may have changed his seizures already, as he had a complex partial yesterday. Good for you seeking out more knowledge, the more you know the better you feel! Good Luck, Mama bear