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New to all of this--sudden constant seizures--help!

Thu, 05/11/2017 - 09:19
Hi everyone. My husband recently had a tonic colonic seizure which landed him in the hospital. 34 year old male--no history of seizures at all. The eeg in the hospital showed abnormal activity in the left temporal lobe. Thy put him on 500 mg of Keppra twice a day. The side effects have been killer. He continued to have bad auras and what I thought were partial seizures, so now he's up to 1000 mg of Keppra twice a day. A 24 hour EEG showed no seizures but did show abnormal brain spikes again in the left temporal lobe. The doctor added Vimpat (100 mg twice a day) and then just doubled the dose. The doctor does not seem to believe me when I say my husband is having partial seizures every day, but I am observing arms shaking, loss of time, disorientation, and eyes blinking rapidly with no response. He is also falling asleep right after most of these episodes. My husband is the sole provider for our family and this is very hard on all of us. This has been going on for three weeks now. Has anyone ever seen where a person at 34 suddenly has seizures everyday? Could this be BECAUSE of the medication? Can this go away? Thanks, everyone. It's just so upsetting.

Comments

Welcome,I read your post and

Submitted by just_joe on Thu, 2017-05-11 - 21:49
Welcome,I read your post and understand your concern. Did the neurologist tell you what the diagnosis was?? Did he tell your husband to take meds and how to take them? Did you listen to the diagnosis? Do you know a person can have more then one type of epilepsy and more then one type of seizure? Most of the things you posted are types or parts of different seizures. Loss of time and no response would tell me he lost consciousness. Now without knowing how long he has been taking the medications it is hard to figure out when most side effects will leave. But then by increasing the meds and adding another there is also a time period. It generally takes about 3 weeks for the medication to build in the body and that is about when most side effects are gone. The increase and addition will add about 2 weeks. I currently take the same meds. I take the highest dosage of keppra the makers will allow. We added vimpat because we thought it might help control my seizures better. And that is what happened.Neurologists and doctors do not have a magic wand when it comes to medications and dosages. Each person is different and their thresholds are different and that is why a medication that works for one person may not for the next.Anybody at any time can get epilepsy. As for why so many. I sure don't knowAs for your thinking the doc didn't believe you when you came up with partial seizures. Well he probably knows more about the types of seizures he was having and they are generalized too. Meaning he can have a lot of different types of seizures. Kind of like I could. I did have my fair share of different seizures. But I worked with Doc and I have only had a focal seizure every 8-14 days and at times a month. My seizures today last a few seconds and if you were looking and talking to me you wouldn't know I had it.You might want to ask the neurologist if his seizures are clustering. They have rescue meds that stop the clustering. I have one which I take right after a focal seizure. If I don't they can cluster and by doing that I have one seizure after another until I have had 4=5 and the time in them is longer and that is when I lose energy and it takes time to get back to normal. The reason he falls asleep after seizures is because they drain energy. If you see muscles jerking fine. But know that those muscles are jerking with all the strength they have. At the age of 13 and weighing 85 lbs I tossed my step father over my body. He was 6'3" and weighed 235 lbs.It will take time for the side effects to stop or leave. It is important to take his meds as directed. @ times a day does not mean 10 am and 6 pm even tho those times are morning and night. Most doctors want the dosages to be taken 12 hours apart or as close to that as possible

Sorry that you are going

Submitted by mereloaded on Fri, 2017-05-19 - 13:52
Sorry that you are going through this. My son started at 15, I feel for you.Adult onset epilepsy is not uncommon. The best way I can describe it is like a dam. Daily flow of electrical impulses go through the brain. Everyone gets blimps once in a while, but some others get it more often. As we age, our body slows down and so is our capability to contain those abnormal brain impulses. Stress, lack of sleep, changes in health, alcohol makes our tolerance for abnormal brain impulses much lower (also known as seizure threshold, everyone has one). So it only takes ONE to overflow the dam and for your brain to go there (called break through seizure). After it goes there then it is easier for it to flood again sort of speak. The eye fluttering and jerks are normal with people with epilepsy. My son has facial tics once in a while and eye fluttering when nervous. That will never change. His medication works because even though he got a small facial tic it didn't become a larger seizure. The medication slows down or stops the "flood". Medication is only for symptom treatment as epileosy has no cure. So you may see an eye flutter or a jerk here and there until he starts feeling better, heals, rests and recovers from what his brain has gone through recently, which is very traumatic. As medication builds in his system (usually a month) the symptoms will subside. If not, other treatment options should be considered (which his neurologist is doing by adding  Vimpat.The good news is that his new eeg is showing that the medication is controlling his seizures, so he will see some relief as the meds build up in his system. 2000mg a day is a common dose for an adult male (max dose is 3500 I believe).He seems to be in good hands. I know this is all scary, but for now he needs rest and peace to heal and recover. Good luck

Sorry that you are going

Submitted by mereloaded on Fri, 2017-05-19 - 13:54
Sorry that you are going through this. My son started at 15, I feel for you.Adult onset epilepsy is not uncommon. The best way I can describe it is like a dam. Daily flow of electrical impulses go through the brain. Everyone gets blimps once in a while, but some others get it more often. As we age, our body slows down and so is our capability to contain those abnormal brain impulses. Stress, lack of sleep, changes in health, alcohol makes our tolerance for abnormal brain impulses much lower (also known as seizure threshold, everyone has one). So it only takes ONE to overflow the dam and for your brain to go there (called break through seizure). After it goes there then it is easier for it to flood again sort of speak. The eye fluttering and jerks are normal with people with epilepsy. My son has facial tics once in a while and eye fluttering when nervous. That will never change. His medication works because even though he got a small facial tic it didn't become a larger seizure. The medication slows down or stops the "flood". Medication is only for symptom treatment as epileosy has no cure. So you may see an eye flutter or a jerk here and there until he starts feeling better, heals, rests and recovers from what his brain has gone through recently, which is very traumatic. As medication builds in his system (usually a month) the symptoms will subside. If not, other treatment options should be considered (which his neurologist is doing by adding  Vimpat.The good news is that his new eeg is showing that the medication is controlling his seizures, so he will see some relief as the meds build up in his system. 2000mg a day is a common dose for an adult male (max dose is 3500 I believe).He seems to be in good hands. I know this is all scary, but for now he needs rest and peace to heal and recover. Good luck

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