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New to all of this--sudden constant seizures--help!

Thu, 05/11/2017 - 09:19
Hi everyone. My husband recently had a tonic colonic seizure which landed him in the hospital. 34 year old male--no history of seizures at all. The eeg in the hospital showed abnormal activity in the left temporal lobe. Thy put him on 500 mg of Keppra twice a day. The side effects have been killer. He continued to have bad auras and what I thought were partial seizures, so now he's up to 1000 mg of Keppra twice a day. A 24 hour EEG showed no seizures but did show abnormal brain spikes again in the left temporal lobe. The doctor added Vimpat (100 mg twice a day) and then just doubled the dose. The doctor does not seem to believe me when I say my husband is having partial seizures every day, but I am observing arms shaking, loss of time, disorientation, and eyes blinking rapidly with no response. He is also falling asleep right after most of these episodes. My husband is the sole provider for our family and this is very hard on all of us. This has been going on for three weeks now. Has anyone ever seen where a person at 34 suddenly has seizures everyday? Could this be BECAUSE of the medication? Can this go away? Thanks, everyone. It's just so upsetting.

Comments

Adult onset epilepsy is not

Submitted by mereloaded on Fri, 2017-05-19 - 13:57
Adult onset epilepsy is not uncommon. The best way I can describe it is like a dam. Daily flow of electrical impulses go through the brain. Everyone gets blimps once in a while, but some others get it more often. As we age, our body slows down and so is our capability to contain those abnormal brain impulses. Stress, lack of sleep, changes in health, alcohol makes our tolerance for abnormal brain impulses much lower (also known as seizure threshold, everyone has one). So it only takes one to overflow the dam and for your brain to go there (called break through seizure). After it goes there then it is easier for it to flood again sort of speak. The eye fluttering and myoclonus are common in people with epilepsy. My son has facial tics once in a while and eye fluttering when nervous. That will never change. His medication works because even though he got a small facial tic it didn't become a larger seizure. The medication slows down or stops the spreading of the abnormal electrical impulses. Medication is only for symptom control as epileosy has no cure. So you may see an eye flutter or a shake here and there until he starts feeling better, heals, rests and recovers from what his brain has gone through recently, which is very traumatic. As medication builds in his system (usually a month) the symptoms will subside. If not, other treatment options should be considered, which his neurologist is doing by adding another med.The good news is that his new eeg is showing that the medication is helping, so he will see some relief as the meds build up in his system. 2000mg a day is a common dose for an adult male (max dose is 3500 I believe). It is common to have residual symptoms after suffering a large one or clusters He seems to be in good hands. I know this is all scary, but for now he needs rest and peace to heal and recover. Good luck 

Adult onset epilepsy is not

Submitted by mereloaded on Fri, 2017-05-19 - 13:58
Adult onset epilepsy is not uncommon. The best way I can describe it is like a dam. Daily flow of electrical impulses go through the brain. Everyone gets blimps once in a while, but some others get it more often. As we age, our body slows down and so is our capability to contain those abnormal brain impulses. Stress, lack of sleep, changes in health, alcohol makes our tolerance for abnormal brain impulses much lower (also known as seizure threshold, everyone has one). So it only takes one to overflow the dam and for your brain to go there (called break through seizure). After it goes there then it is easier for it to flood again sort of speak. The eye fluttering and myoclonus are normal on people with epilepsy. My son has facial tics once in a while and eye fluttering when nervous. That will never change. His medication works because even though he got a small facial tic it didn't become a larger seizure. The medication slows down or stops the "flood". Medication is only for symptom treatment as epileosy has no cure. So you may see an eye flutter or a shake here and there until he starts feeling better, heals, rests and recovers from what his brain has gone through recently, which is very traumatic. As medication builds in his system (usually a month) the symptoms will subside. If not, other treatment options should be considered (which his neurologist is doing by adding  Vimpat.The good news is that his new eeg is showing that the medication is controlling his seizures, so he will see some relief as the meds build up in his system. 2000mg a day is a common dose for an adult male (max dose is 3500 I believe).He seems to be in good hands. I know this is all scary, but for now he needs rest and peace to heal and recover. Good luck

Adult onset epilepsy is not

Submitted by mereloaded on Fri, 2017-05-19 - 13:58
Adult onset epilepsy is not uncommon. The best way I can describe it is like a dam. Daily flow of electrical impulses go through the brain. Everyone gets blimps once in a while, but some others get it more often. As we age, our body slows down and so is our capability to contain those abnormal brain impulses. Stress, lack of sleep, changes in health, alcohol makes our tolerance for abnormal brain impulses much lower (also known as seizure threshold, everyone has one). So it only takes one to overflow the dam and for your brain to go there (called break through seizure). After it goes there then it is easier for it to flood again sort of speak. The eye fluttering and myoclonus are common in people with epilepsy. My son has facial tics once in a while and eye fluttering when nervous. That will never change. His medication works because even though he got a small facial tic it didn't become a larger seizure. The medication slows down or stops the spreading of the abnormal electrical impulses. Medication is only for symptom control as epileosy has no cure. So you may see an eye flutter or a shake here and there until he starts feeling better, heals, rests and recovers from what his brain has gone through recently, which is very traumatic. As medication builds in his system (usually a month) the symptoms will subside. If not, other treatment options should be considered, which his neurologist is doing by adding another med.The good news is that his new eeg is showing that the medication is helping, so he will see some relief as the meds build up in his system. 2000mg a day is a common dose for an adult male (max dose is 3500 I believe). It is common to have residual symptoms after suffering a large one or clusters He seems to be in good hands. I know this is all scary, but for now he needs rest and peace to heal and recover. Good luck 

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