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Medic ID bracelets for toddlers
Sun, 10/04/2009 - 04:09HI I my 3 year old has partial complex seizures that have gotten worse since first being diagnosed in January. Im afraid her seizures are going to develop into tonic clonic's. Her neck is starting to be like a noodle during her seizures and she can't hold her head up. Her seizures have gotten so much longer in time as well.
Do any parents of epileptic children have their kids wear Medic ID bracelts? She is starting preschool in the next couple months. As soon as she is put on the right medication. I have an appt. with a new neurologist on Mon., hoping to get some answers to why she is seizing so much being at almost the max dosage of Trileptal for her age and weight. I have been calling her neurologist for the past 10 days straight only to receive one phone call back at 7:30 pm (that i missed) telling me he was going on vacation. The same doctor that has been increasing her Trileptal rather than trying to figure out what the right medicine is for her. I feel so helpless watching my daughter got through this. She asks me why her face shakes. She has extremely strong seizures in her face. She drools buckets and can't speak clearly after a seizure for sometimes a couple hours. Her speech is so slurred. I just need some support from people that have been going through this longer than my daughter and I.
Re: Medic ID bracelets for toddlers
Submitted by littlebug on Sat, 2009-10-31 - 14:37
It sounds like a new neuro is a great idea. My daughter is nine now and has had seizures since she was two. I ordered her medic braclet from Petite Baubles. com. They have a great selection of bracelets that are really cute. My daughter collects frogs and I found her a braclet with a frog charm on it. She loves it. Its helpful for them to have one in school. (substitute teachers and field trips) My daughter was on trileptal for four years. We eventally had to switch her to Lamictal. If you contact trileptal via email they will send you a book that you can read to your daughter about seizures. My daughter has it. I can't remember the name of it but I think its on there web site. Also when my daughter was younger I made her wear a life jacket in the pool. Exspecially if adults weren't in the pool. ( sometimes we would sit by the pool and talk.) She still has to were one to the beach. Good luck. I thought dealing with her seizures was going to be the hardest thing I had to deal with. I found letting her go to school and not being there with her and trusting that people that don't deal with seizures were going to be responsible for her was even harder.
It sounds like a new neuro is a great idea. My daughter is nine now and has had seizures since she was two. I ordered her medic braclet from Petite Baubles. com. They have a great selection of bracelets that are really cute. My daughter collects frogs and I found her a braclet with a frog charm on it. She loves it. Its helpful for them to have one in school. (substitute teachers and field trips) My daughter was on trileptal for four years. We eventally had to switch her to Lamictal. If you contact trileptal via email they will send you a book that you can read to your daughter about seizures. My daughter has it. I can't remember the name of it but I think its on there web site. Also when my daughter was younger I made her wear a life jacket in the pool. Exspecially if adults weren't in the pool. ( sometimes we would sit by the pool and talk.) She still has to were one to the beach. Good luck. I thought dealing with her seizures was going to be the hardest thing I had to deal with. I found letting her go to school and not being there with her and trusting that people that don't deal with seizures were going to be responsible for her was even harder.