Medic ID bracelets for toddlers

I would strongly recommend a new neurologist! That is absurd. When my daughter was first diagnosed we saw several different neurologists and there was one that put her on Trileptal, her seizures increased as well and also changed their form. I would call the doctor several times a day wanting to know what to do, why this was happening and he would never call me back. I finally got ahold of a different neurologist and they told me to stop the medication (Don't do this without your doctor telling you to do so) and my daughters seizures really decreased. We have been on several different medications since but we will never try Trileptal again because of the reaction she had with it. The neuro that she she sees now said that based on her type of seizures she should never have been put on Trileptal in the first place, not sure if that is possibly the case with your daughter as well. But one of the biggest lessons I have learned is that I have to be an advocate and demand the best treatment at all times, there are doctors who are careless and don't seem to understand the agony that parents go through and maybe they are overworked as well- whatever the case is... it's up to you to ensure that your daughter gets the best care possible. Start documenting everything, start a calendar and keep track of every seizure- how long it lasted, what it looked like, etc.... also start documenting medication changes, increases, side effects you see. Try to find and Epilepologist to see, the one that my daughter sees changed our lives. Good luck! It's a scary and hard battle to fight but it can get better. We have been in this world of Epilepsy for over 2 years now, some days we can almost forget that Katie has seizures. As far as the bracelet, Katie wears one. She has an italian charm bracelet with a medical alert on it. They were cheaper than some of the other ones that I have been and she got to design her whole bracelet her self. (She's 4)

I completely agree with the other posts.  Find a new neurologist!  You must be vocal and demanding for the care your daughter deserves.  my son was diadnosed at 5 months old.  We literally "lived" at the children's hospital for 3 months trying 6 different medications.  All of which failed to control his seizures.  It's been the most horrific experience of my life.  The treatment that finally worked for my son was The Ketogenic Diet.  We had to push for it as our neurology team was skepticla it would work.  We didn't want to keep playing the medication game.  We found an amazing dietician who has expeience with The Ketogenic Diet and we were able to control his seizures enough to move out of the hospital.  We haven't been back!   My son also suffers from low muscle tone and can't hold his head.  Levocarnitine is a supplement my dietician recommended.  It has done wonders for his muscle control!  He is now able to roll over (11 monts old).  Hang in there, research everything first and don't be afraid of the Doctors.  Their job is to help your daughter!   

Hi my daughter is 4 and was diagnosed with SCN1A gentic disorder when she was 2 1/2 months old, I just recently ordered an ID bracelet from her at zoobearsmedicalid?.com.  I hope you find a better neurologist, we are located in seattle, wa and her neurologist has been a great help between medication and answering my questions, he also has a team with him, private nurse who I can talk to and a social worker who helps my daughter with her special needs.