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Medic ID bracelets for toddlers

Sun, 10/04/2009 - 04:09

HI I my 3 year old has partial complex seizures that have gotten worse since first being diagnosed in January. Im afraid her seizures are going to develop into tonic clonic's. Her neck is starting to be like a noodle during her seizures and she can't hold her head up. Her seizures have gotten so much longer in time as well. 

Do any parents of epileptic children have their kids wear Medic ID bracelts? She is starting preschool in the next couple months. As soon as she is put on the right medication.  I have an appt. with a new neurologist on Mon.,  hoping to get some answers to why she is seizing so much being at almost the max dosage of Trileptal for her age and weight. I have been calling her neurologist for the past 10 days straight only to receive one phone call back at 7:30 pm (that i missed) telling me he was going on vacation. The same doctor that has been increasing her Trileptal rather than trying to figure out what the right medicine is for her.  I feel so helpless watching my daughter got through this. She asks me why her face shakes. She has extremely strong seizures in her face. She drools buckets and can't speak clearly after a seizure for sometimes a couple hours. Her speech is so slurred. I just need some support from people that have been going through this longer than my daughter and I.

Comments

Re: Medic ID bracelets for toddlers

Submitted by Addibaby on Sun, 2010-10-03 - 23:10
I had thought of getting a medical bracelet for my son. How do you get a three year old to keep it on? I totally agree with everyone here, get a new neurologist. I know from experience, it is a pain in the butt. I am still looking for that great doctor.  We are going to start the modified atkins diet in a few months. My son is on max dose of depakote. This is med number three we have tried and the doctors we have seen will not let you try a diet until three AED's have not worked. Keep your head up! You are not alone! :-)

Re: Medic ID bracelets for toddlers

Submitted by Sophs64833 on Mon, 2010-10-04 - 01:32
To make young kids keep the med bracelet on, convince them its a "cool" thing to wear.... i think... psycology....

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