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Muscle Twitch in Legs/body?

Wed, 11/01/2006 - 10:32
Hi Everyone, I just discovered this site the other day. I am hoping it will be a good forum for information and support. I am 33 years old and was diagnosed with seizure disorder last June. I haven't had any seizures since starting dilantin, however I continue to have what I like to call "Seizure Activity". Essentially it involves muscle tics/jerks/spasm in my legs, and now in my face. It usually only happens when I am tired. My doctor keeps telling me it isn't necessarily seizure related, but it's too abnormal not to be. Not to mention that the symptoms started when my seizures started and also subsided when I started the meds.

Comments

Re: Muscle Twitch in Legs/body?

Submitted by snowwoman on Mon, 2010-07-26 - 20:10

Hi hmselby2,

It's hard to tell with meds if the reaction/side effect is not a 'classic' one.

I developed a tremor of my eyeballs (it feels like they tremoring, but someone watching does not see it moving; I feel like someone is shaking the landscape I am looking at from side-to-side) after going on Topamax. I thought it was the drug and brushed it off. When I went on Keppra, it happened too. Too much of a coincidence so I started wondering.

Happens, I have a tremor of the body anyway. So my docs said it was possible the tremor has spread and I would have had it anyway. So it was very abnormal for me because it was new, but then again, maybe not that abnormal. I even thought about the possibility of some funny seizure (simple partial?) that I didn't realise I was having.

I'm thinking your case is similar. You have a seizure disorder, and MAYBE, it's related and is an extension of some sort. Maybe it could be the drug.

Ask your doctor. Mine conceeded she doens't know. She believed me, thankfully.

At the end of the day, we might never find out, but at least, the doctor is aware of it, has it on record, and can take possible future precautions, if any!

Good luck!

Hi hmselby2,

It's hard to tell with meds if the reaction/side effect is not a 'classic' one.

I developed a tremor of my eyeballs (it feels like they tremoring, but someone watching does not see it moving; I feel like someone is shaking the landscape I am looking at from side-to-side) after going on Topamax. I thought it was the drug and brushed it off. When I went on Keppra, it happened too. Too much of a coincidence so I started wondering.

Happens, I have a tremor of the body anyway. So my docs said it was possible the tremor has spread and I would have had it anyway. So it was very abnormal for me because it was new, but then again, maybe not that abnormal. I even thought about the possibility of some funny seizure (simple partial?) that I didn't realise I was having.

I'm thinking your case is similar. You have a seizure disorder, and MAYBE, it's related and is an extension of some sort. Maybe it could be the drug.

Ask your doctor. Mine conceeded she doens't know. She believed me, thankfully.

At the end of the day, we might never find out, but at least, the doctor is aware of it, has it on record, and can take possible future precautions, if any!

Good luck!

Re: Muscle Twitch in Legs/body?

Submitted by amber1981 on Mon, 2010-07-26 - 22:58

I was diagnosed back in January of this year. At the same time my seizures started, the twitching started too! It got so bad at times that some that my body would constantly have a twitch somewhere. After being diagnosed and put on meds, the intensity of the twitching slowly decreased, but has never completely gone away. It still scares me sometimes...

Amber

I was diagnosed back in January of this year. At the same time my seizures started, the twitching started too! It got so bad at times that some that my body would constantly have a twitch somewhere. After being diagnosed and put on meds, the intensity of the twitching slowly decreased, but has never completely gone away. It still scares me sometimes...

Amber

Just wondering if you have

Submitted by Maniac on Wed, 2018-06-20 - 14:08
Just wondering if you have learned anything new?  My son (6 yr old) twitches/jerks A LOT every single night since he had a seizure. Feet, legs, hands, arms, chest, shoulders, mouth, etc. All random twitches like lightening is hitting him while he sleeps (1am-7am). This started right after he had 2 nocturnal seizures.  I think it's seizure activity. Doctor says "Myoclonus". But it's every night, and it goes on for a long time disturbing his sleep.   Wondering if we learned anything about your twitches?

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