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EEKKSS- Incontinence worsening

Thu, 08/03/2006 - 20:22
When I first got E? I was never incontinent, felt so sorry for people who had that problem. But THEN I started waking up at night, several years later, urinating and I couldn't get it stopped. Worse, my legs were noodly or I couldn't stand at all, I had tremendous confusion, rarely made it to the bathroom. I went to my doctor thinking I must have much worse bladder prolapse than I thought and found out I was having nocturnal sz's and at the end of the sz the bladder sphincter holding urine in can relax, I can't control it (no kidding) which also explained why my legs were so weak, I was confused. Then someone posted a thread right after that about the same thing and I found out my symptoms were classic and shared by many. It doesn't happen with every nocturnal. I really don't know why it happens only periodically. But lately? This is really just hard for me to handle. I'm having only urine, not bowel, incontinence during the day occasionally, not always but that means I HAVE to wear incontinence products all the time. I've tried different kinds, weights, thicknesses and I really would like to know - what in the heck works? I'm sorry if this is very blunt but this problem is very embarassing. I've tried THE heaviest pad or pants they have and I can't find anything that works totally. I'm not sure why either. My urine volume my doctor tested and it's not unusually high, in fact low. Maybe the incontinence pads can not be in the right place but how can that panty be off if it's snug (aka adult diaper - MAJOR ICK). Do others have success controlling the moisutre? Good grief of all the indignities and crap I've gone thru having E? I DO wish I'd be spared this one. Gretchen

Comments

Re: EEKKSS- Incontinence worsening

Submitted by Horsewhisper on Thu, 2008-07-31 - 10:38

I know this is an old thread, but...I am a guy and this is a very sensitive and horribly embarassing part of this Dx for me.  I have seizures since a brain tumor and stroke.  I have problems like this with my seizures & am at a total loss as to what to do.  I am a tall large framed guy so when this happens it's a LOT of volume.  I have to work in a public setting and have battled with finding something that is virtually undetectable.

 I finally found cloth w/ plastic covers and put a disposable over the cloth.  It can't be heard or seen and isn't bulky.  No one has ever noticed in a year & I have even had seizures at work w/ bladder emptying consequences.  No problems since I found this combination.

 HW.

I know this is an old thread, but...I am a guy and this is a very sensitive and horribly embarassing part of this Dx for me.  I have seizures since a brain tumor and stroke.  I have problems like this with my seizures & am at a total loss as to what to do.  I am a tall large framed guy so when this happens it's a LOT of volume.  I have to work in a public setting and have battled with finding something that is virtually undetectable.

 I finally found cloth w/ plastic covers and put a disposable over the cloth.  It can't be heard or seen and isn't bulky.  No one has ever noticed in a year & I have even had seizures at work w/ bladder emptying consequences.  No problems since I found this combination.

 HW.

Re: EEKKSS- Incontinence worsening

Submitted by Cathy_C on Sun, 2006-08-06 - 19:23
Gretchen, I have only actually urinated in my pants once with a really bad seizure from going without my meds too long, but I feel really bad for the fact that you have had so much trouble with this. Has your doctor put out any type of suggestions to you about what works best for most women? Also, you might ask about being put on Lasiks (I know I spelt that wrong). That helps with urinating problems. Is that what is happening? Is it a problem with losing the urine during seizures or just draining at all times. I would really get some answers from your family doctor as well as your neurologist. They must have other patients that this has happened to. I hope you have the best of luck getting this straightened out. God Bless and stay strong. Hugzzzzzzzzz, Cathy

Re: EEKKSS- Incontinence worsening

Submitted by David Jones on Fri, 2009-12-04 - 12:30
My incontinence has gone to the point that I don't dare go without wearing diapers.  Due to neurological blessings I have no idea as to when I am about to soak myself. The seizures have gone to the point that I have very limited memory. Personally I think my memory problems is a whole lote worse than having to wear cloth diapers and plastic pants.

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