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EEKKSS- Incontinence worsening

Thu, 08/03/2006 - 20:22
When I first got E? I was never incontinent, felt so sorry for people who had that problem. But THEN I started waking up at night, several years later, urinating and I couldn't get it stopped. Worse, my legs were noodly or I couldn't stand at all, I had tremendous confusion, rarely made it to the bathroom. I went to my doctor thinking I must have much worse bladder prolapse than I thought and found out I was having nocturnal sz's and at the end of the sz the bladder sphincter holding urine in can relax, I can't control it (no kidding) which also explained why my legs were so weak, I was confused. Then someone posted a thread right after that about the same thing and I found out my symptoms were classic and shared by many. It doesn't happen with every nocturnal. I really don't know why it happens only periodically. But lately? This is really just hard for me to handle. I'm having only urine, not bowel, incontinence during the day occasionally, not always but that means I HAVE to wear incontinence products all the time. I've tried different kinds, weights, thicknesses and I really would like to know - what in the heck works? I'm sorry if this is very blunt but this problem is very embarassing. I've tried THE heaviest pad or pants they have and I can't find anything that works totally. I'm not sure why either. My urine volume my doctor tested and it's not unusually high, in fact low. Maybe the incontinence pads can not be in the right place but how can that panty be off if it's snug (aka adult diaper - MAJOR ICK). Do others have success controlling the moisutre? Good grief of all the indignities and crap I've gone thru having E? I DO wish I'd be spared this one. Gretchen

Comments

Re: Re: Re: Re: Re: Re: EEKKSS- Incontinence worsening

Submitted by gretchen1 on Fri, 2006-08-18 - 14:51
Oh poopy! I saw my neuro yesterday. He had a phone consult with a pee doctor and both said incontinence products are just Graa-te, whatza problem Gretchen. Oh, I'm not sure, try peeing your pants in public and THEN we'll talk. I TRIED to smile, be a good sport. Prior to that appt I had a test at the hospital, had a big sz standing in line to Admissions and OF COURSE in a large crowd - yeah you got it. I will practice "acceptance" and if you believe THAT? You'll buy swamp land in Florida. I'm no longer depressed though. Heck no - I'm FURIOUS. I've given up enough, I would really like my bladder to stay SHUT at all time. IOW I DO think my son and I should have some dignity left. All the medicines suggested are for stress incontinence which right now seems like small change. When you sz and have no control over your muscles? Guess what other muscle is kapooey? Yeah, well. Spiz? I hit my right knee again and I would like pity. There, I said it. Oslo your routine your doctor suggested? They thought that was just revolutionary and I'm trying very hard to do that, takes time huh? As IF I don't have oodles of time. I'm banking on it. The pee doctor was impressed. So why didn't he know about it? Gretchen --------------------------------------------------------------------- I've found if I walk through my fears? I find courage on the other side. It's that first step that is hard but each concessive one becomes easier as I reach my goal -- Gretchen

Re: Re: Re: Re: Re: Re: Re: EEKKSS- Incontinence worsening

Submitted by David Jones on Thu, 2007-05-24 - 09:11
I too have epilepsy. My medication works for the most part but I now am having to deal with a problem with incontinence. Absence seizures are occuring several times a day. I can be doing some thing and all of a sudden go blank. I normally can go on doing what I was doing, but during the blank period I normally soak myself. I wear adult diapers to keep from embaresing myself. As Grechen mentioned being in a chech out line and having a period can be... I wear protection so that I can live some what a normal life.

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