Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

simple partial, does anyone else in the whole world have it?!?!?!?!?

Fri, 07/01/2005 - 22:06
i'm 12 1/2, diagnosed w/ epilepsy about 2 1/2 years ago, and i can't stand it!!! when i was in 4th and 5th grade, i was o.k. i didn't care. but now that i want to do riskier things (surfing, scuba diving) it's a LOT harder. whenever i read about epilepsy, it's about people who have 200 absent seizures a day, grand mal seizures, and all of these operations. i know it's hard on them, REALLY hard, but it can be hard on me, too. i have NEVER heard of someone who has simple partial, and so i feel so different and set apart. i was sobbing this morning because i thought i might not be able to go to surf camp (i was really looking forward to it!) because of my condition, but my mom called my doctor and he said it was o.k., but i should wear a life-vest! i would be the only 1!!!! i don't want to be different! i want to fit in! it's already hard enough when people ask me why i take pills (trileptal, 300mg twice a day). i want to know if there is some one out there like me, waiting for someone who understands. my friends CLAIM they understand, and so does my mom, but they don't, they just DON'T!!! i need to know!!and if you have it, please reply! and just to help, you can still do fun stuff! i got to go tandom paragliding, so life will get better.

Comments

RE: simple partial, does anyone else in the whole world have it?

Submitted by amyh on Sun, 2005-07-03 - 07:02

Hi,

My daughter is 13 years old and has complex partial siezures and absences siezures.  When she gets up today I will ask her to post to you.  She has restrictions like you do in her activities and I know it is hard and frustrating for her too!  Perhaps some of the pre-teen and teens could share e-mail addresses and be "e-mail pals" with each other.  We parents will always support you as best we can, but we will never truly understand all that you are going through.  Only someone who is walking in the same shoes will really understand all that you are feeling.  You can write to Sarah at my e-mail address:  ahmt@comcast.net.  I'm sure when she posts she will add her AOL address for you, I can't remember it right now!

Amy H.

Hi,

My daughter is 13 years old and has complex partial siezures and absences siezures.  When she gets up today I will ask her to post to you.  She has restrictions like you do in her activities and I know it is hard and frustrating for her too!  Perhaps some of the pre-teen and teens could share e-mail addresses and be "e-mail pals" with each other.  We parents will always support you as best we can, but we will never truly understand all that you are going through.  Only someone who is walking in the same shoes will really understand all that you are feeling.  You can write to Sarah at my e-mail address:  ahmt@comcast.net.  I'm sure when she posts she will add her AOL address for you, I can't remember it right now!

Amy H.

RE: RE: simple partial, does anyone else in the whole world have

Submitted by pineapplebeach9 on Sun, 2005-07-03 - 10:12
Hi,thank you so much for taking the time to reply and i can't wait to hear from yuor daughter!

RE: RE: RE: simple partial, does anyone else in the whole world

Submitted by grez-monkey on Tue, 2005-07-05 - 12:53

pineapplebeach9,

This first time I read over what you posted on message #1, it stuck in my head for a several days, because I wanted to think and look around for some answers. This is why I didn't respond to quickly. Guess what? I came up with some ideas you might want to think about.

Do you know if there is anyone else in school who has epilepsy? Maybe there is. Someone could be the same age as you. Some could be older, some could be younger. If so, how could you find out? Well, the next time you go to school, go ask the school nurse. Whenever you go to see your doctor, ask then and the nurse there too.

You said that you wanted to know if there's someone out there like you? I'm sure there is. Not just one person, but several. Whenever you find anyone else, share your stories and work together to learn more about epilepsy. Why am I saying this? So you can talk to other people and become their teacher and leader. Share what you have read and have learned about epilepsy with someone who doesn't know about epilepsy and feels left out. You and other kids can come back on this teens folder here and chat with other teens to help them. Answer their questions. Share what you learned, with other people who need to learn too.

If there comes a day when you need to do a school project or create a special bookreport. Make it one about epilepsy.

Hope that you can understand what I'm trying to explain. I bet that you can because with what I read in your messages, you're a smart kid.

Bruce J

pineapplebeach9,

This first time I read over what you posted on message #1, it stuck in my head for a several days, because I wanted to think and look around for some answers. This is why I didn't respond to quickly. Guess what? I came up with some ideas you might want to think about.

Do you know if there is anyone else in school who has epilepsy? Maybe there is. Someone could be the same age as you. Some could be older, some could be younger. If so, how could you find out? Well, the next time you go to school, go ask the school nurse. Whenever you go to see your doctor, ask then and the nurse there too.

You said that you wanted to know if there's someone out there like you? I'm sure there is. Not just one person, but several. Whenever you find anyone else, share your stories and work together to learn more about epilepsy. Why am I saying this? So you can talk to other people and become their teacher and leader. Share what you have read and have learned about epilepsy with someone who doesn't know about epilepsy and feels left out. You and other kids can come back on this teens folder here and chat with other teens to help them. Answer their questions. Share what you learned, with other people who need to learn too.

If there comes a day when you need to do a school project or create a special bookreport. Make it one about epilepsy.

Hope that you can understand what I'm trying to explain. I bet that you can because with what I read in your messages, you're a smart kid.

Bruce J

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.