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simple partial, does anyone else in the whole world have it?!?!?!?!?
Fri, 07/01/2005 - 22:06Topic: Teen Zone
i'm 12 1/2, diagnosed w/ epilepsy about 2 1/2 years ago, and i can't stand it!!! when i was in 4th and 5th grade, i was o.k. i didn't care. but now that i want to do riskier things (surfing, scuba diving) it's a LOT harder. whenever i read about epilepsy, it's about people who have 200 absent seizures a day, grand mal seizures, and all of these operations. i know it's hard on them, REALLY hard, but it can be hard on me, too. i have NEVER heard of someone who has simple partial, and so i feel so different and set apart. i was sobbing this morning because i thought i might not be able to go to surf camp (i was really looking forward to it!) because of my condition, but my mom called my doctor and he said it was o.k., but i should wear a life-vest! i would be the only 1!!!! i don't want to be different! i want to fit in! it's already hard enough when people ask me why i take pills (trileptal, 300mg twice a day). i want to know if there is some one out there like me, waiting for someone who understands. my friends CLAIM they understand, and so does my mom, but they don't, they just DON'T!!! i need to know!!and if you have it, please reply! and just to help, you can still do fun stuff! i got to go tandom paragliding, so life will get better.
Re: Re: simple partial, does anyone else in the whole world have
Submitted by epileptic teen on Fri, 2007-01-05 - 17:15
I know exactly what your going through. I have the simplest seizures possible, just a twitch of the head and a weird tingling. But it's still hard. Just go with it. I understand that it's hard to be different, but there are lots out there just like you. Epileptics can do just as much as normal people. Don't let your epilepsy hold you back. And yeah others don't understand, but try epilepsy support groups, it might help.