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any help please?

Thu, 11/25/2004 - 19:01
hi, i'm 17 and i've been reading up on epilepsy and everything. i'm not sure what i have, and i was hoping maybe someone could help... i get this thing, usually when i'm about to fall asleep, or when i'm sleep deprived. it doesnt necessarily happen at those times though. its when my whole body starts shaking really violently, usually throwing me out of bed. i stay fully conscious during it, but cannot control it.. i can hear everything around me and see everything, though i'm shaking too much to be able to make stuff out. when this stops, i end up just lying there paralysed. after a few seconds (but it seems like longer) i get my breath back, and soon begin to be able to focus my eyes. it takes a while for me to be able to speak, and even longer to be able to move at all. feeling and ability slowly returns to each of my limbs one after an other, but takes me longest to be able to walk.. even when i can walk, my legs would give way every now and then. i know when its going to happen, so i can scream out to anyone there. it puts me into a state of panic when i know its going to happen, and afterwards, i panic incase it happens again.i went to the doctor, and ended up in hospital, but still no one could tell me what it was. they just said i would grow out of it, and i'm glad to say that they died down, and i didnt get them soo much, but it seems to be flaring up again. the good thing is that sometimes, i'm able to stop it before it starts.if anyone knows anything about this, i'd be very grateful for any information at all.thanks for your time.

Comments

RE: RE: RE: RE: RE: RE: RE: any help please?

Submitted by AmberH on Wed, 2005-06-29 - 19:53
I'm a student right now studying to be an EEG technician, and I've been doing my bulk of clinicals at The Children's Hospital in Philadelphia and your best bet is to see a neurologist to get an EEG done, that way hopefully they can diagnose what type of seizure disorder you have. I read that you mentioned they started when you were 8 and also usually occur when you are getting ready to go to sleep or when you are deprived of sleep. I've learned about this type that is called Benign Rolandic Epilepsy and it occurs in children and they say it is the best to have because you usually grow out of it but they are nocturnal seizures occuring a person is sleeping or upon awakening. But definetly try to see a doctor...and i wish you the best of luck.

RE: RE: RE: RE: RE: RE: RE: RE: any help please?

Submitted by grez-monkey on Wed, 2005-06-29 - 21:40

AmberH,

Just so you know, I am not an experienced technician, I'm an experienced person WITH epilepsy. You must be a new person to the group because with the search results I performed at the time of typing this reply, you have posted three replies overall, all of which were just today. Welcome to the group.

There is a huge amount of up-to-date, detailed and easy to understand information with the epilepsy.com website, but I just wanted to bring something to your attention. Whenever you make a run through all of the posted subject threads, just like this very one right here, make sure that you look at the dates. The ones for when it was first posted and also the one for the last person who has replied. The last person who posted on this thread was last year in November. That's over 7 months ago. I've only been with this community forum since January this year and have never once seen any of those other user names. So those people may no longer be with the forum. Just a hint and tip about this community forum. Don't read just the lines, read what's between the lines too.

Please tell us more about your studying of trying to become a EEG technician.

Bruce J

AmberH,

Just so you know, I am not an experienced technician, I'm an experienced person WITH epilepsy. You must be a new person to the group because with the search results I performed at the time of typing this reply, you have posted three replies overall, all of which were just today. Welcome to the group.

There is a huge amount of up-to-date, detailed and easy to understand information with the epilepsy.com website, but I just wanted to bring something to your attention. Whenever you make a run through all of the posted subject threads, just like this very one right here, make sure that you look at the dates. The ones for when it was first posted and also the one for the last person who has replied. The last person who posted on this thread was last year in November. That's over 7 months ago. I've only been with this community forum since January this year and have never once seen any of those other user names. So those people may no longer be with the forum. Just a hint and tip about this community forum. Don't read just the lines, read what's between the lines too.

Please tell us more about your studying of trying to become a EEG technician.

Bruce J

RE: RE: RE: RE: RE: RE: RE: RE: RE: any help please?

Submitted by AmberH on Thu, 2005-06-30 - 20:48
Thanks for the advice, i didn't notice the dates until after I had postedand realized that it was from over a year ago so yea I guess next time i will look into that. Do u know why they keep discussions that old still there?

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