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Temporal lobe surgery
Tue, 07/28/2009 - 03:05Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery.
Has anyone experienced negative effects of the surgery?
Concerned mother. Regards, Anne-Marie
I live in Hawaii! & I bounced
Submitted by chelseap on Tue, 2018-07-31 - 17:03
I live in Hawaii! & I bounced back and forth between doctors and got no answers for 5 years! My epilepsy is in my right temperol lobe. After years of medications not working I took control & finally got to see a specialist in the mainland, out of pocket and on my own. I now see the doctors at harbor view medical clinic in Washington and they gave me hope in my first visit! They’re pretty confident that surgery will help me get my life back! So I go back in October for more tests, PET scan and neuropsychological testing to determine what part of my temperol lobe. All of my MRI’s are normal, so they have nothing to pin point! I’m so excited to be able to do the surgery as these seizures have interrupted my life completely! I have a young daughter, trying to finish school, and trying to provide for my family is a must! I see a lot of post that people have pain after the first week of the surgery. Is there anyone that didn’t? What can you take for the pain? If it’s that bad, should I plan to stay in Washington for a few weeks after my surgery, instead of flying back to Hawaii and not be able to get help?