Should I have surgery?

Re: Should I have surgery?

Submitted by RTL on Sun, 2011-06-19 - 10:07

I can't tell you what you should do.  I can tell you that I did have surgery and have detailed my experiences here:

http://users.eastlink.ca/~kehoe/surgery/

Kevin

Re: Should I have surgery?

Submitted by seahorse on Tue, 2011-06-21 - 00:28

I understand what you are going through completely, I had surgery about 7 years ago.  My doctor thought that it would decrease my seizure frequency, unfortunately I continued to have seizures after my surgery.  after my surgery further testing revealed that my seizures are ccaused by an underlying disease called rassmussens.encephalitis i HAVE HAD EPILEPTSEIZURES OF EVERY TYPE OVER A PERIOD OF 17 YEARS.  HAS YOUR DOCTOR DONE A PET SCAN ON YOU.  iF YOUR SEIZURES COULD BE STOPPED OR GREATLY REDUCED BY SURGICAL INTERVENTION THEN YOU SHOULD EXPLORE THAT OPTION, BUT i WOULD NOT SUGGEST GOING THROUGH WITH IT IF YOUR SEIZURES HAVE NOT BECOME CRITICAL.  FOR ME IT WAS MORE difficult to recover from the surgery than it was to have it, I was bed ridden for 7 months, Has your doctor investigated alternative therapies to surgery, I ungergo immunoglobulin treatment every month and it helps reduce my seizure frequency and severity.  Do not let fear of what the results might be stop you from having hope,you never know what they can do for you unless you try.  I would have never known that I have a rare disease that causes epileptic seizures if I had not gone through with surgical intervention.  Like you my seizures were hard to find the foci of, it is part of the disease process of Rasmussens Encephalitis.