Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?

Re: Re: Re: Re: Re: Re: Re: Experience with Cortext Dysplasia/Co

Submitted by cheryl doran on Sat, 2006-09-09 - 11:53

Hi Shannon, My heart goes out to you when I hear of Jack's trouble in school. I just can't imagine having that extra pressure on me. I really get fearful when I hear of Jack's struggle because who knows, we might be there someday. I know this sounds crazy, but I wake Gabe up at 6:15 a.m. to give his meds. he goes back to sleep for 1hr. 45mins.,just all to make sure he is alert enough for school. He does alright in school, he does struggle and needs an extra amount of time to get new concepts. I'm really not sure if this is just Gabe or med. related. Right now he's having 1-2 szs. a day and I'm thinking of calling the dr. to increase his meds. That scares me because he'll just be more drugged during school. Right now his szs. don't seem to bug him too much. He has had 2 at school and 1 at soccer practice. I think the szs. stress me out more than him. I did call his dr. 2 days ago to just check and see if they still had Gabe on the list in Seattle, since we haven't heard a word for 5 weeks. They assured us that Gabe is indeed on the list, we just need to be patient. As far as Jack is concerned, boy Shannon, I don't know what I'd do about the school situation. I know what you're saying about the special ed. room, but on the other hand, would he feel more confident becuase he might feel some success? Or is he really objecting to the special-ed room? I think my son would probably object because he would just be "different". I would imagine he is getting discouaged becuase he can't keep up. What about tutoring after school, along with the aide in the classroom? Are you in the position to home -school just till the surgery and recovery is over? I don't know- I'm just throwing out different ideas. I know that whatever decision I came to would probably involve my son's feelings, also. I just hope and pray that after surgery you won't have these same worries, and life can resume to normal or at least significantly improved. Wouldn't that just be a gift? Do you sleep well at night or do you worry alot? Since school has started I've become much more stressed. I think of all the bad things that could happen. I definetly project too much into the future, but on the other hand, I want to be realistic. I feel bad that I spend so much mental energy on Gabe that I often am too spent for the other kids and their needs. Keep me posted on Jack. Gabe and I keep Jack in our prayers. Cheryl