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Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Wed, 08/09/2006 - 23:52Topic: Surgery and Devices
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed with frontal lobe epilepsy 4 yrs ago. He is now a surgical candidate and I am wondering if anyone has went through this already and what their outcomes have been like. Thank you very much! Jack's Mom
Re: Experience with Cortext Dysplasia/Cortical Dysplasia & Surge
Submitted by zanesmom on Sat, 2006-12-02 - 02:43
my son just underwent epilepsy surgery and the pathology report came back stating it was cortical displaysia. His MRI's did not show anything at all until this past summer, he is 3 and then they did capture a small area so he became a surgery candidate. Zane has had seizures daily since 3 months of age. He is on 4 AED's and has simple and complex partial seizures in his sleep every night. He is pretty much on target developmentally except for his expressive speech. He had the intra-cranial monitoring surgery Nov. 15th and by the following Wednesday they had gathered enough info, located the focal point and done the brain mapping and were ready to do the resection. Nov. 22 they did the resection and removed the focal point of the seizures and this is the 9th day we have lived seizure free!!! He seems to be feeling fine, running and playing. Has already started talking more and is just generally more alert. I am cautiously optimistic, keep waiting for the other shoe to drop... He does seem to have either a slight limp or some stiffness in his left ankle/leg. We are not sure if that is temporary during healing process or a result of the surgery, although the brain mapping showed the entire area to be non-responsive tissue. Time will tell, but if we are done with seizures we can deal with a limp. Best of luck to your family!!