Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Why don't people try chiropractic care?

Wed, 06/20/2007 - 16:05
I have a nine month old son diagnosed with severe intractable seizures. He has had no syndrome diagnosis yet and has been tested for many. The neurologist, Doctors, Epileptologists left me with little hope and a grim future. I started taking him to a Chiropractor at six months age. He is now on his 27th day seizure free and already stepping him down from his meds ( Phenobarb, zonegran, keppra and diastat) which he was on the max of all as well he is also on the Ketogenic diet. Stage would have as many as 24 seizures (Grand mal) per day since birth. He has not had more than two seizures in one day since seeing the chiropractor. Even the neurologist and Ketogenic dietician are impressed with how well my son is doing. There also is a little girl at my chiro's office who was having seizures onsetting at six years of age. After a month and regular visits to the chiro. she is seizure free. I get really frustrated when I think about how hospitals don't even reccommend Chiro's. I went against my neurologists advice and I am glad that i did. Those damn seizures fried enough of my babies brain. He is nine months old and has several health issues associated with the seiz's which we are hoping will improve with time. When my son was origionally hospitalized at two weeks a twist of fate happened and the baby in the next rooms dad had a brother who had seizures and he said they took him to a chiro and they went away. That same day I asked the neuro.s and they said "No it would compromise the seizure control we had". What control? He was having nonstop seizures over medicated and sedated choking on his own secretions and would stop breathing. I'm glad with the choice I made. I say give it a chance the side effects of seeing a chiro is never going to be as bad as what those drugs and seizures took from my baby and our family. I am happy to say that my son is not only on his 27th day seizure free (longest since birth), but he is starting to smile. Waking up. Making sounds. Moving his hands, toes and feet. Our future has so much hope. He still has a lot of therapy ahead of him. Physical, speech, eating you name it, but you know what he at least has a future at this point. Thanks to Doctor Hansen the chiropractor. (Whom by the way was so moved by my son and his downward spiral of health he has never accepted a payment and has done all of my sons care out of pocket) My one word of advice? You know your kid better than anyone and trust your instincts they are usually right. The hardest thing for me to accept was that I was never going to find anyone person who has gone through the exact thing as me and I've been to the real low's. I wish everyone hope. This has been a traumatizing ride one which has forever changed who I am. I am often resentful to those who take their children's health for granted because these days when my infant sons fingers brush against mine I realize how prescious having a healthy child can be.

Comments

Re: Re: Re: Why don't people try chiropractic care?

Submitted by janellesmom on Fri, 2007-11-09 - 10:57
thanks, i've been reading past blogs you've posted our situations are alot simular my daughter is 6 months we are seeking a second opionin with an epilpsey specialist so far she has janelle on a b12 for a month and something else i cann't remember the name but it helps brake down proteins i believe? she has been on them for a week today is also her 2nd day phenobar. free!! she is still seizing averaging 10 a day but they are lasting seconds once in a while she will hold her breath. in a few days her neuro will prombly up her dose' like your son my daughter was born with seizures they weren't caught until she she 6 months with failure to thrive- still no answers she is beging to make eye contact and track very slowly, at least i think? she is crying to eat when before i practly had to force her to eat or place an N.G. i hope i get to see her smile i've been waiting for months. gosh you have came a long way looking back not to long ago you were going through some really hard times your son seem to do a 360 ! i'm glad w've discoverd this site its been my greatest therapy- none of my friends who are parents can't come close to what i've been through with my daughter-monthly shots and ear piercing teething "big whoopie" lets talk spinal tabs eeg's MRI's blood tests... shit it gets hard and those conversations are lame :) i tend to get bitter now and then sory. we live in califorina thanks for the replay :) i will do some research i hope sometime today godbless you and your baby. shina

I know what you mean with

Submitted by stages mom on Sat, 2007-11-10 - 09:38
I know what you mean with how hard things get. I'm not entirely sure that Stage has done a 360. He still has seizures, but are much less and his quality of life has seemed to improve. Yesterday he had 3 and this morning 1. I cried endlessly for months and some days still do. In fact I had to get up this morning because I couldn't go back to sleep because I was crying. This is probably the lonliest road I have ever been on. But it does get better. You adjust and you reach a level of acceptance. Which is where I am getting to. I have seen my son get an L.P. take him in for EEGs and all that good stuff too. You will amaze yourself with how strong you can be for your child. The only thing I really wish I would have done earlier on was to reach out to support groups. I contacted the ARC which has a organization called Parent to Parent. They hook you up with a experienced parent who's child has or had similar health issues. My sponsor parent is amazing she gives me so much hope and strength to draw from. I'm sure if you contact your daughters hospital or a social worker they will be more than happy to help. I was reluctant to seek help for the longest time and now I am glad that I reached out. Jamie (My sponsor parent) listens to everything I have to say. She knows, shes been there. Stage (my son) has been profoundly affected by his epilepsy and I hate seizures with absolute deep hatred. But I love my son and I can't get off this ride too soon. So I might as well enjoy it. I interact with my son the best I can. He is visually impaired so I give him candles to smell. Fur to touch. You name it. Is your daughter involved in Early Intervention Program with therapists? How is she developing? Every state has an early intervention program and you can probably get it. The therapy services will work wonders for your daughter. Please....Feel free to contact me any time. It would mean something to me if I thought I could help ease your pains and struggles because I didn't have that until now and it's helped. God bless you and your family.

Re: Re: Re: Re: Why don't people try chiropractic care?

Submitted by Gradyfam4 on Fri, 2007-11-09 - 11:58
My son is 3 and has been seeing a Chiro all his life. When he was diagnosed with E we found a Chiro in our area that worked with mostly childred. When we first stared going to the new dr. the started doing cranial adjustments via pressure point. I have noticed a huge differnce! My son is still having seizures but they are much shorter and intense. We have not adjusted him meds either. You should do it!!!!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.