some who can relate please respond

i'm a 22 year old mother i have 2 children justin 19 months and janelle almost 3 months justin is perfectly healthy, janelle on the other i believe was born with seizures she hasn't been diagnose yet but has had 3 EGG's, spinal tab meobolic labs,MRI,catscann..ect niether me or my boyfriend have family history- she was born at 35'/2 weeks she is barely starting to track things, she seems to reconize my voice' not very good with lifting or moving head. also doesn't seem to feel any pain' she is currently taking pheno. and keppra has anyone been in my situation i don't know what to expect and would really like someone to relate to. now doctors want toadd toppamax to janelles meds lately she has been having seizures back to back lasting several minutes the longest was 12 min. has any other parents children have these same mixtures of meds.??