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overwhelmed
Sat, 05/31/2014 - 23:08My 5 year old daughter was recently diagnosed with having what her pediatrician considered to be absense seizures. After reading the results to a pediatric neurologist, the neurologist does not feel this is the type of seizure my daughter is having and wants her to be seen. However, there does not appear to be any real urgency to see her. The first neurologist could not see her until September and now again we are playing a waiting game with another one. I am fairly frustrated, scared, stressed, you name it, I have it as the mother of my wonderful little girl. My concern is that she is having over 15 on a daily basis which at this time are lasting no more than 30 seconds. Is this normal? Is there anyone that can offer some comforting advice ?
Neuro their name is waiting.
Submitted by Anonymous on Mon, 2014-06-02 - 19:47
Neuro their name is waiting. If she is having clusters, go to your pediatrician. No, it is not normal to have 15 daily. Your pediatrician can talk to a neur and sometimes they can prescribe a low dose of AED to tie her while you wait.I know this is scarry and I hope you getr seen soon. Also, call different practices, as sometimes they hacve cancellations. Ask to be placed on waiting lists too.