Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

My 10-year-old daughter with epilepsy

Fri, 03/09/2007 - 23:09
I am new here. My daughter had her first seizure at 6 yrs. She had a grand mal or tonic-clonic seizure. Seven months later she had another seizure and then was started on Clobazam. She was on Clobazam for about 6 months, but then the doctor changed her meds as she was having a lot of irritability and moodiness on it. She was started on Valproic acid and slowly weaned off of the Clobazam. She has been on Valproic since. She started having absence seizures a couple of years ago, but they were getting more frequent and lasting longer. So she now has started on Lamictal as well as the Valproic Acid. She is having a lot of problems at school over the last 4 years. This past year has been awful for her. She is failing grade 5. She has an IEP, but this year her teacher is new to the school. She doesn't know my daughter and has no patience for her at all. My daughter has been having absence seizures and the school is aware but I don't think they believe that is what is happening. I have tried talking to her teacher, but she never offers any info. as to how she is doing, other than she is doing the same, very non-compliant. My daughter cries almost every day, she hates school this year and doesn't want to go much of the time. The teacher gave me a letter last week saying she needs to do tests for about 5 subjects in the next week. She had this week and then next week they get report cards on WEd. If my daughter doesn't do these tests, she will get a failing grade. Right now she is getting incomplete. Why the teacher never told me when she was getting so far behind, offered to send work home for her or anything to try and help my daughter. I think she just leaves my daughter doing nothing and never bothers to see if she is having problems or seizures or anything. I think she just doesn't want to do anything to help her, figures she should be able to do what all the other kids are doing in her class. She doesn't have a support worker in the class with her, which she has for the past 4 years. They do have a support worker that comes in once in awhile to work with her, but not enough I think. I am hoping the addition of the Lamictal will stop her absence seizures or that she won't have as many so she can concentrate better thereby giving her more confidence in herself. We have decided to keep her in grade 5 for next year as this year has been a total write off for her. Sorry for all the complaining, I just needed to get this out. I never realized the anti-seizure meds and the seizures could be causing her learning problems and her knowing things one minute and then gone the next until reading a lot of the posts here. Her doctor always said he didn't think it was the meds or seizures. He figured she has ADHD too. It is so hard to know which is true and probably never will. Thanks for listening.

Comments

Re: Re: Re: My 10-year-old daughter with epilepsy

Submitted by MindyRoy on Thu, 2007-04-12 - 10:24
Hi! Well...we are still having problems. The seizures aren't gran mal, but yet strong than absence. She is still have 3-4 a day. The ones that she has while she is trying to sleep are getting better. But now she is having them durning the day. This past weekend we went to Ohio for Easter. My family lives there. My mom and dad have seen Shelbie have a gran mal, but my sister hasn't. On saturday she did pretty well with coloring easter eggs and the easter egg hunt, but once she sat down she had 3. 2 were very mild, but 1 was very jerking and she was out of it for 20 sec. My sister ran to her to try and stop it. She was very upset that she couldn't. But she does understand them now. Shelbie was okay afterwards. She is a little dazzed, but she can go back to what she is doing after these. The gran mal, she wants to sleep. So I am not sure what type of seizures she is having. On Monday she was walking to the play ground and fell. She was having a seizure. She broke her tooth and scraped her chin pretty good. Than on Tuesday she was having one a few feet from me. I tried to catch her before she fell, but she hit her back on the tv. We went to the doctor yesterday. They have scheduled another video EEG for tomorrow 4/13. I am hoping this will show what is going on in her little head. They also talked about changing her medinice to keppra. I have heard a few things about this, but you never know until you try. Anyways, we are doing okay. She is in school, but is scard to be there. when she fell on Monday she did this in front of her class. She told everyone she tripped, but the teachers saw her shaking as she was falling. I just want them to stop. She is so upset about these. She cries when she has them. I just don't know what to do for her. Well...thanks for letting me talk. Take care. Mindy

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.