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Losing My Mind

Tue, 08/21/2007 - 13:01
Well its been a while since I posted about Ariana. It's been two months that she has been on Keppra alone after being weaned off trileptal and failing lamictal because of the rash. Since being on the Keppra she has only had one partial seizure in 2 mos. YAY! BUT.... the rage and anger is getting worse. She was a bit emotional when she started it but now is out of control again and that is the same thing that the trileptal did to her. She is also very hyper. I have read others saying their children are sleepy, but not Ariana. She doesn't even walk anymore. School last year was a nightmare and this year she is going to a self contained classroom of about 7 other kids from 3rd to 5th graders. She will be in 3rd. I am very concerned about the outbursts that have started and the anger. She has hit her 4yo cousin, thrown things at him, her brother, me. I do know one of the problems is that the nights when she is with her father, he lets her go to sleep at any time and she is not getting her keppra at the same time each night. The other night she got it at 11pm and went to bed around midnight. I give it to her at 8:30 and she goes right in bed at that time. Her neuro said that can affect things and I have tried to speak to her father but forget it. The thing is that even the weekends and nights she is with me and i'm consistent, she still has this rage and anger. School is just around the corner and I dont want another wasted year or a child getting hurt by her. The thought of switching meds again makes me crazy but I think part of her issues is the keppra. Shar

Comments

Re: Re: Re: Re: Losing My Mind

Submitted by yobaybay on Fri, 2007-08-24 - 03:25
zonegran did the same thing to my son Mykael. He became the unknown demon child, but we put him on topamax and he is my angel again, we are only up to 2 capsules of sprinkles per morn and night, but he seems to be doing better, tho he is getting alittle (well alot) chunky ;)

Re: Re: Re: Re: Re: Losing My Mind

Submitted by Shar on Fri, 2007-08-24 - 09:05
Hello, I hope Ariana gets back to normal with the topamax. I know it will take some time to get the keppra out of her system too so I'm not expecting overnight results. Glad to here it worked for Mykael. Did he have any problems with not sweating on the topamax? I am just worried because she is so sensitive to these medications and seems to get all of the negative side effects. Thanks for your response. Nice to hear something positive! Shar

Re: Re: Re: Re: Re: Re: Losing My Mind

Submitted by Baby Sam on Tue, 2007-08-28 - 20:32
My son did great on Topamax for a few months. He is on a much lower dose now b/c we are adding in another drug but I did not see any side effects at all. In fact, his development took off and he actually seemed happy! I LOVED Topamax, it was a miracle! I hope that you have a good experience as well. Good luck and best wishes.

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