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Help/advice please - Simple partial seizures in 2 year old son
Thu, 03/22/2007 - 13:40Topic: Parents & Caregivers
My 2 year old son has simple partial seizures based on a history diagnosis only. We are on a waiting list for an EEG, MRI, bloods and Neurologist appointment. Despite weekly hounding its been 2 1/2 months and still no appointment date yet!
The Pediatrican is putting him on Tregretol tomorrow as his seizures which started at about 18months have increased in frequency from one evey 4 weeks to every 2 days and often in clusters. During a seizure he is conscious, his eyes flicker and his head turns, eyes well up with tears. He is very scared and cries and remembers the seizure afterwards.
His behaviour has started to change - he's being naughty alot. I dont know if this is because I dont want to tell him off (having trouble as I am worried that I may upset him and bring on a seizure) or if it is because he is 2 years old (terrible two's) or if it could be related to the seizures?
I guess I want to hear from anyone else who has had a child with partial seizures or has it themselves. I have read too much information online and have frightened myself that his seizures are symptons of a debilitating syndrome or brain trauma of some kind.
Any advice please?
Re: Help/advice please - Simple partial seizures in 2 year old s
Submitted by littlebug on Thu, 2007-03-22 - 16:26
my daughter was two when she started having seizures.Do you have other children at home?I understand your fears about being afraid by upsetting him that he might have a seizure but I think its inportant that you treat him the same way you treat the other children if you have more.also you cant let him use having seizures as away of getting away with things.and yes I'm sure part of the problem is that he is two.Its called the terrible twos for a reason.add meds and a seizure disorder and it makes it that much more difficult.I know when my daughter started meds or they raised them look out the moodswings and temper came out.hang in there I know its hard waiting for the nerou.It was 2 1/2 months before my daughter got to see the neruo.It was a hard time waiting.