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Grow out of seizures???

Sun, 05/21/2006 - 21:52
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test, but that's just to be safe (we thought he had MSUD). Has anyone else heard this? Has anyone else had an experience where someone "grew out of it?" Just looking for the positive!

Comments

Re: Grow out of seizures???

Submitted by north2ak on Wed, 2009-03-25 - 23:57
My daughter is 6 years old and has had complex partial seizures since she was 2. She too was diagnosed with idiopathic seizures. We were also told that she would most likely outgrow them. She has had a very hard time getting controlled seizures. She has been hospitalized twice in the last 12 months spending over 6 weeks in the hospital due to uncontrolled seizures. The last time she was hospitalized she was having over 100 seizures in a 24 hour period. I asked the Neuro what her chances were still of outgrowing her seizures. He told me that because her seizures were idiopathic meaning that there was no visible cause for her seizures that she still stood a chance of outgrowing them HOWEVER, he said if we can never gain control of her seizures she will never outgrow them. He told me that in order to outgrow them they have to be controlled. For us this is unfortunate since she still has 1 seizure every 7-10 days. This has been the case for the last 8 months. She has never gone longer than 10 days without one and she's on medication. So to help answer your question, if your child's seizures are controlled the higher their chance is of outgrowing them. One piece of advice is to search around for a good Dr. It makes a huge difference. My daughter has been hospitalized 3 times in 3 different states. There is a definite difference in the quality of Neurologists. Make sure you find one that you are comfortable with. And also understand that seizure disorders are very frustrating because nobody really has answers. Each patient is a different case. Good Luck to you.

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Re: Grow out of seizures???

Submitted by la_femme_rose on Fri, 2009-08-21 - 09:18
I had seizures starting at birth until about 7 months old. After about a year being seizure free my parents weened me off my medication and I have never had any other seizures or health problems. I am now the mother of a 5 month old who has had seizures from birth and I am hoping he too will outgrow his seizures. He is on keppra and it has been about a month since his last seizure. He was having grand mal seizures anywhere from one a day to every couple of hours. fingers crossed he doesn't have any more.

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