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Constantly Worried about 16 yr Old Son
Mon, 07/10/2017 - 12:12Topic: Parents & Caregivers
I am constantly worried. My son is 16. He has a grand mal seizure seems like every 4 months not sure what triggers them. I'm an er nurse and have had many patients with seizures but when it's your child it so difficult to watch. He's been lucky that he's been at home for 3 times out of the 6 he's had so far. But I worry constantly aBout swimming, water rides, being home alone. being out with friends, driving (he can't get his permit yet bc it hasn't been 6 months) but even then I would be totally worried. I don't even want to work far from home bc I'm afraid I wouldn't get to him in time. I'd like to keep him home in my bubble but I know that's not right. He plays baseball and so far he's been fine with that. I just feel so alone I have no one to talk to about this issue. He takes keppra and seems depressed to me. I'd love to find him a support group for teens bc I know he feels so alone too. Thanks for listening
Comments
I understand completely. My
Submitted by mythoughtis on Sat, 2017-09-16 - 21:38
I understand completely. My son is now 25 and I still worry everyday. He went thru a period in college like your son of seizures every few months. Mostly because he'd forget to take his meds because dorm life wasn't conducive to the normal routine, although illness and stress don't help. He just had a seizure 4 months ago after 2.5 years seizure free. He's living 4 hours from us and he's doing ok. Working, taking the bus, etc. his employer knew about his condition when they hired him, so this seizure( at work) was not a problem for him. They were, in fact, very supportive,
Melissa, where did you get
Submitted by 1Littlebutt on Sat, 2017-07-29 - 00:37
Melissa, where did you get the seizure watch?