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Anyone been through kid having lumbar puncture? (spinal tap)

Fri, 11/24/2006 - 00:21
Hi I am brand new first week of E with my 2 1/2 yo son. He is scheduled to have a Lumbar Puncture when he gets his MRI and additional blood tests in 2 months. All research I am doing does not link this test to epilepsy. I understand that it is looking for virus or disease, but all the virus and diseases it will detect do not read as being linked to E. Does anyone know why they are doing this test?

Comments

Re: Re: Re: Re: Re: Anyone been through kid having lumbar punctu

Submitted by Essie on Tue, 2006-11-28 - 03:58
Hello there Mama Bear! It's so nice to chat with you. I really hope that Fletcher will be able to tolerate the lamictal. It does have alot of advantages. It's gonna be more difficult for you because he's so young. At least my son could say that his head hurts or I could calm him down when he went into one of the emotional cries, by explaining it's the medication. Just keep an eye out for that rash, and don't panic (I did!). We were camping out of the city when it appeared! They say you have a couple of days time from it appears, until it either needs treatment, or it dissappears. My son's started on the Saturday, and by the Tuesday it was totally gone. I just continued to give his meds (on doctor's orders!) You know, I really don't know why the atonics is not as scary to me, as the tonic-clonic. Maybe because I've experienced the atonic, and not the tonic-clonic. It's always the unknown that scares me. So far my son was also very fortunate not to have hurt himself (he was always on grass or a floor). Never hits his head. It seems to just buckle his legs underneath him for a second. I too get low blood pressure and faint. So it's not something that scares me. But to see your child twitch and not breath, that's what I'm scared of. Especially since it can go into status. Maybe after his first tonic-clonic I'll feel different. Oh yes, and you ask where I am. From South Africa. In the city of Centurion (it's a few kilo's north of Johannesburg). Our health system is also quite good, especially in private care. My son is with an extremely good pediatric neurologist. Oh, and remember, medications have different names in different countries. Lamictal is also known as Lamictin. Take care, Essie

Re: Anyone been through kid having lumbar puncture? (spinal tap)

Submitted by wldhrt13 on Fri, 2006-11-24 - 23:55
my son had three lumbar punctures (spinal tap) in one night. it was following a febrile seizure he had with a high temperature with no other cold/flu symptoms. it was done in the emergency room. the first doc did one but got blood tinged sample which meant it was useless and could not be used as a sample. then he asked me to help hold my son down for a second attempt. this sample was also blood tinged. at this point the y called in a pediatric neurologist to come from Boston to do the procedure. when he did it and got another tainted sample he recommended admitting him to hospital and quarantinne him for observation. as the ped. neuro explained it to me, my son has a rare structural anomaly. he has a blood vessel which runs very close to his Cerebro Spinal Fluid (CSF) canal. which makes it almost impossible to get a clean test. as it turns out the doctor was concerned about bacterial meningitis with my son because of his high fever and no other symptoms. it was ruled out. it was simply a virus.

Re: Re: Anyone been through kid having lumbar puncture? (spinal

Submitted by mamma bear on Sat, 2006-11-25 - 01:01
Thanks for the responses. I have found out that they are checking for amino acid levels. Apparently these can effect brain synapsis if not balanced.

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