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10 month old. potential seizures daily.
Wed, 07/16/2014 - 22:30Topic: Parents & Caregivers
My daughter will be 10 months in two days. 5 days ago she began to have, what I believe to be, seizures. When it began her jaw clenched and every muscle in her body tightened. It only lasted a couple of seconds then there was a pause and it happened again. There were two groups of these seizure like episodes. We took her to the hospital. They took blood and dismissed it. Saying that it probably wasn't a seizure and to follow up with our doctor. The next day it happened again. In another cluster. Same charecteristics. We went to her primary dr who said that it may have been seizures and that we should see a nuerologist for an eeg. We contacted 3 different nuerology departments all of which have a wait exceeding a month. Meanwhile, the seizure-like episodes are happening in clusters of 2 or 3, 2 or 3 times a day. Now sometimes including slight tremoring instead of just tensing. I can not see how this can wait over a month to be addressed/diagnosed/treated. Especially since it seems to be progressing slightly.
What do I do? I am terrified.
Comments
There are basics they should
Submitted by Amy Jo on Fri, 2014-07-18 - 18:50
There are basics they should know (our ED does, not that I trust them for anything super specialized, we talk to on call surgeons when heading there, but sometimes it is an emergency or it is the only way to get a working IV into my child), but normal blood work will catch sugar, infection, electrolyte issues that can cause seizure or seizure like episodes. And our neuro would have ordered those blood tests along with csf tests at the first appt if we hadn't already had them all checked a few months prior. Saved some diagnostic waiting time having prior test results in the system.
I know that normal blood work
Submitted by just_joe on Sun, 2014-07-20 - 14:39
I know that normal blood work can rule out several things like diabeties and other things. I also know that I was in a ER and blood work was done. They ruled out those issues. I was also given a EKG and not asked a frigging question about anything having to do with my heart. If teh EKG showed normal it shouldnt have. If it showed afib why wasn't I asked about it?? They asked few questions. I did tell them I had a few seizures(a cluster) and I knew I was aware of where I was and I had wanted to go home so I could lay down and I would have been better without having to be taken 3 extra miles and run thru tests I had to pay for when they did nothing but cost me money. You see I do know what happens at some emergency rooms.
Amy do the people in ER know
Submitted by just_joe on Fri, 2014-07-18 - 16:52
Amy do the people in ER know all that info? I had blood work done after I had a cluster of seizures and was taken to the ER. I also had an EKG. The blood test was for general things. Oh and the EKG didn't show I had AFIB which I do have. I also know that blood work can be done for many different things to come to a reason for this or that. But the blood they need is far more then regular blood work. When they released these people had they contacted a neurologist? Did they even think about the possiability of epilepsy?