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This place is NOT a supportive place.

Tue, 08/29/2006 - 12:25
I tried to email this to the Moderator so it would not be placed in plubic, but it came back as unable to deliver, so then I tried to send it to the webmaster and it came back too. So I will post it here. Dear Moderator, First let me say hello and good morning 0(*_*)0 I am sadden by what I do not see at your website and felt the need to verbalize it. I joined Epilepsy.com a few days ago in the hope of gaining in-site as well as maybe a few new friends. I first found a tread that I felt I may be able to give a small input to, so I reply to it. I was not only the first to reply but as of this morning, the only one to. I even went to one of your treads you have for new people and open a tread myself, just to say hello I'm new here. As of this morning I have yet to get a reply from anyone saying "Welcome". Not even a staff member has said hello on it. It saddens me to see how little if any caring people are at your site. I noticed others who had done as I had and started a "hello I'm new tread" and like myself had no one reply. I have been a member of the epilepsyfoundation.org for many of years and it has some of the greatest members you will ever come across at it. We all (most of us) will always welcome and even give a hug to any and all new members. Years ago when I was having 30 plus seizures a month, and had lost my Lic. to drive due to my seizures, thank goodness I had loving and caring friends at epilepsyfoundation.org to turn to. People who lifted my spirits up and said things on the lines of "Sending you hugs Tonya". I haven't open/started a tread there in a few years but I try to reply to any and all if not to say anymore than "My heart goes out to you" or "I'll keep you in my prayers". You see I had a RTL 1/13/98 and have remained seizure free/drug free so I am "living well with epilepsy" so to speak. But I'm not alone for many like myself will always take a few min. to give a reply or a hug where needed. I guess I'm rambling on a little to much here, but what it all comes to is kinda like this. Your site is not a warm, caring and welcoming place to be, it is cold and uncaring. Thâñkš ƒô® Ÿóú® †ím€!! Dovie aka Tonya (¯`'·.¸¸.•Dovie••(¯°¤• •¤°¯)••Hug§•.¸¸.·'´¯)

Comments

Re: This place is NOT a supportive place.

Submitted by Joan K on Tue, 2006-08-29 - 20:15
Hey welcome Dovie! I haven't been on too much lately with 1 kid moving and both in college. Now I can breathe again and come up for air. I actually thought they were more capable than they were...lol. Welcome to our group and see you in chat some night. Hugs Joan K

Re: Re: This place is NOT a supportive place.

Submitted by Dovie on Wed, 2006-08-30 - 05:10
Good morning and thank you all for your kind words of welcome. I can now see that there are some warm friendly people here. They say that sometimes it takes something bad to happen to be able to see the good in people. Maybe this is one of those times, for due to a neg. post I have seen some very warm words from caring people like yourselves. Again let me say thank you all. Dovie (¯`'·.¸¸.•Dovie •.¸¸.•ª°ª•(¯°¤• •¤°¯)•ª°ª•.¸¸.•Hug§•.¸¸.·'´¯) "For daily need there is daily grace; for sudden need, sudden grace, and for overwhelming need, overwhelming grace." ô¿ô 0(*_*)0 0(Q _ Q)0 ( ^ . ^ )

Re: Re: Re: This place is NOT a supportive place.

Submitted by Essie on Wed, 2006-08-30 - 08:31
Hello Dovie My two cents as well.... I also found that not everyone answer every blog or forum. But I don't think we should take it personally. Some ppl believe they should only type a reply if they have something constructive to say or have a similar experience. And there is SO much to do and read on this site. It takes alot of my time, just scanning through some things. And time is something we don't have in abundance. I've really met alot of caring and sympathetic ppl on this site in the week I've joined, and they've helped me SO much already. I've chat a short time with you in the chat room, and think you're a caring, loving person with a good sense of humour, and alot of experience. I would love for you to stay on this site, and help our "newbies" to epilepsy out. Well, hope to see you again in the chat room, Take care Essie (mom to Nian(5), who has epilepsy)

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