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This place is NOT a supportive place.

Tue, 08/29/2006 - 12:25
I tried to email this to the Moderator so it would not be placed in plubic, but it came back as unable to deliver, so then I tried to send it to the webmaster and it came back too. So I will post it here. Dear Moderator, First let me say hello and good morning 0(*_*)0 I am sadden by what I do not see at your website and felt the need to verbalize it. I joined Epilepsy.com a few days ago in the hope of gaining in-site as well as maybe a few new friends. I first found a tread that I felt I may be able to give a small input to, so I reply to it. I was not only the first to reply but as of this morning, the only one to. I even went to one of your treads you have for new people and open a tread myself, just to say hello I'm new here. As of this morning I have yet to get a reply from anyone saying "Welcome". Not even a staff member has said hello on it. It saddens me to see how little if any caring people are at your site. I noticed others who had done as I had and started a "hello I'm new tread" and like myself had no one reply. I have been a member of the epilepsyfoundation.org for many of years and it has some of the greatest members you will ever come across at it. We all (most of us) will always welcome and even give a hug to any and all new members. Years ago when I was having 30 plus seizures a month, and had lost my Lic. to drive due to my seizures, thank goodness I had loving and caring friends at epilepsyfoundation.org to turn to. People who lifted my spirits up and said things on the lines of "Sending you hugs Tonya". I haven't open/started a tread there in a few years but I try to reply to any and all if not to say anymore than "My heart goes out to you" or "I'll keep you in my prayers". You see I had a RTL 1/13/98 and have remained seizure free/drug free so I am "living well with epilepsy" so to speak. But I'm not alone for many like myself will always take a few min. to give a reply or a hug where needed. I guess I'm rambling on a little to much here, but what it all comes to is kinda like this. Your site is not a warm, caring and welcoming place to be, it is cold and uncaring. Thâñkš ƒô® Ÿóú® †ím€!! Dovie aka Tonya (¯`'·.¸¸.•Dovie••(¯°¤• •¤°¯)••Hug§•.¸¸.·'´¯)

Comments

Re: This place is NOT a supportive place.

Submitted by motherearth52 on Tue, 2006-08-29 - 18:04
Hi, I am sorry that you have not felt supported on this site. At first I didn't either but I kept going to the chat room and have met some wonderful, caring folks. Not all chats are the same. Sometimes there is alot of rambling about everyday stuff and other times some really good info on Epilepsy and the things that go along with it. Please don't give up. Half the time I forget what I've read and what I haven't. I think you will really appreciate this site once you give it more time. Much love.........Come chat!!

Re: This place is NOT a supportive place.

Submitted by maggie on Tue, 2006-08-29 - 19:24
Dovie~I am very saddened to think that you do not think we are supportive and caring people on this site.We all try to do our best with whatever the day may bring.You need to give this site and us caring,supportive people a chance.Please do feel welcome cause everyone is welcome here.Also,visit our chat room...you will find very loving people there who are willing to help in any way they can.Don't give up!Good luck and God bless you

Re: This place is NOT a supportive place.

Submitted by GodivaGirl on Tue, 2006-08-29 - 19:39
Dovie, Welcome and don't give up on this site. There is a lot you can learn from it, and you do make friends - jump into chat & create a blog that tells us all about you (look up "A Chocoholic Godiva Girl) or something to the effect of - does a boss ever understand - those are my recent blogs. I've only been around here maybe a few weeks and I've met a few cool people. I jump into one "forum" for a bit....chat at time. It all depends. Life gets busy to. Keep in mind, people are here for you, but people are also around to address some serious questions and problems and deal with their own issues as well. Just don't give up on the site. Hang in here. Welcome to ya! Be a social butterfly and you'll connect and get the knowledge you're looking for. Erin

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