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hi! hoping someone reads this! sorry for the length!
Sat, 01/27/2007 - 16:11Topic: New to Epilepsy.com
hi - i am new to this site(obviously), and i am hoping to maybe talk to others that have gone thru things similar if not the same that i have. i was in a car accident almost a year ago- currently being eval. for a possible head injury-due to symptoms i am expierencing(memory loss,trouble with word finding,co-ordination-you name it.)anyway-since the accident, i have had what i call episodes- as i have read on the other posts on the board you call them auras. these "episodes"-vision disturbances,deja vu,out of body expierences,etc.etc.-come out of nowhere- they have continued at random to get worse. for some reason- my doctors do not want to listen when i tell them -brushing it off as panic or depression- the feelings of fear/doom are horrible! i know when i have felt panic -it never felt like this! last bad episode-was monday, standing in a doorway next thing i know i felt like i needed to shut my eyes-i got the deja vu feeling/familiar yet unfamiliar? everything went black,thanit seemed like i was going thru a dark tunnel with flashing lites at a million miles an hour-the tunnel was getting smaller and smaller,felt like being watched and watching myself from? frozen i could not move or scream, but i could hear buzzing and sounds flying around me,eyes were fluttering(i think) and i could hear my breathing (weird),than i got this feeling of sinking(like going up a big hill on a rollercoaster-than everything seemed to start to slow downi could see again and i turned around and walked into the kitchen real tired,it felt like i had all the life drained from me walked back and forth for i don't know why or how long- the rest of the day was a big blur,i do not remember most of it except that the back of my head and neck felt like i had been clubbed- that was the worst pain,nothing would make it leave,it took almost 2 days for that pain to stop.
now- i am not looking for a diagnoses - i am just hoping maybe this sounds familiar to someone- i am scared to death -i have no one to talk to about this that does not look at me like i am spaced out on some crazy drug trip- i have read the epilepsy/seizure symptom pages and that info is helpful-
possibility of seizure(s) after a closed head injury?
(oh-by the way, the two days before monday, i felt nauseas and ill/sick)-if that helps.
Comments
H'mmm. More to this than
Submitted by happycat2 on Thu, 2007-02-01 - 02:32
H'mmm. More to this than meets the eye was my first thought.
Very interesting indeed. This is not the first time I have read about this happening. My guess is it won't be the last either. What you have described happening then read so far seems to indicate that yes you do need to make a call. I hope when you do you find more understanding than you have so far. Sometimes that happens and people don't realize what is important to us because of only seeing what is important to them. I'm no doctor or neuro like Solis, but something is going on here. Something that needs further investigation that's for sure. I have read of people with TLE feeling tired, needing to sleep after a change of their seizure patterns. Temporal lobe Epilepsy can indeed induce the weirdest feelings.
I'm sorry also that at your appt Mon you were met with less than understanding of what was important to you. Doctors and neuros don't always have the answers, and need to remember ...
If a simple seizure originates in the temporal lobe, quite a wide variety of symptoms can occur. This is because the functions of the temporal lobe are quite varied. As with all types of epilepsy, each person is different and straightforward comparisons are not always possible.
Hang in there. Stay positive and upbeat.
Cat.
http://www.epilepsy.org.uk/info/simple.html
"I get the strangest feeling—most of it can't be put into words. The whole world suddenly seems more real at first. It's as though everything becomes crystal clear. Then I feel as if I'm here but not here, kind of like being in a dream. It's as if I've lived through this exact moment many times before. I hear what people say, but they don't make sense. I know not to talk during the episode, since I just say foolish things. Sometimes I think I'm talking but later people tell me that I didn't say anything. The whole thing lasts a minute or two."
The features of seizures beginning in the temporal lobe can be extremely varied, but certain patterns are common. There may be a mixture of different feelings, emotions, thoughts, and experiences, which may be familiar or completely foreign. In some cases, a series of old memories resurfaces. In others, the person may feel as if everything—including home and family—appears strange. Hallucinations of voices, music, people, smells, or tastes may occur. These features are called “auras†or “warnings.†They may last for just a few seconds, or may continue as long as a minute or two.
http://www.epilepsy.com/epilepsy/epilepsy_temporallobe.html
http://professionals.epilepsy.com/page/behavioral_temporallobe.html
"Many false prophets are gone out into the world." 1 John 4:1
Re: Re: hi! hoping someone reads this! sorry for the length!
Submitted by tangledvines on Tue, 2007-01-30 - 12:56
hi maggie! sorry for the delay!(sorry you are going thru this too!) since you seem to be going thru pretty much what i am you may find this very interesting! (let me just say ---I AM SOOO FRUSTRATED ! i could just scream!) ......ok i feel a little better- :) anyway , i had my appt with my pcp on monday, i described what i originally wrote in the start of this thread... and here's what he said............ sounds exactly like someone with low blood sugar! HUH! WHAT ! now i am really confused! i have felt light headed before and i know how i feel if i "forgot" to eat- this in no way shape or form felt the same, not to mention i forgot to tell him a few things , and as i tried to tell him after the "low blood sugar" thing he didn't seem to want to hear anymore... so he wants to send me for a 5 hour fasting ! WHATEVER! oh- and get this- tell me if you ever had this before...THIS IS NEW, FOR ME! yesterday after i got up in the am- i walked into our kitchen to get my daughters lunch/breakfast for the day - and all the sudden i got dis-oriented/lost- (this happens alot since the accident)started with the "whoa-here-we-go" feeling and "hurry-find-a-seat/safe place-feeling" so i slowly sat down, started to feel like my feet and legs were full of lead, real heavy, this seemed to creep up to my mid section-(gap-not sure where i was or what happened)next thing i/know remember staring at the wall- thinking why is everything fuzzy and turning orange?static electricty feeling in my right hand , buzzing?what is the paper towel holder doing there?(that was weird) that moving shadow on the wall looks like a hat? (ok- i know sounds funny now- it wasn't yesterday)- i could not move or talk , just stared at the wall- as i was coming back?- i find myself sitting there, rocking in the chair, almost fell on the floor( i felt, tired, man! and embarrassed!) this didn't last very long although it felt like it - some of the same feelings i originally posted i felt too, not all.strange, huh. yes- i told the dr. about this -i pretty much got cut off, i know what it sounds like. just curious if you ever had this ? also-i found this article on the web that i think you should read- i so help me, i swear this is me (to bad i did not find it before yesterday- it tells me alot!) - you might find it interesting- slatervecchio.com/articles/Verdict_Mar_02_1.htm let me know what you think? i have some calls to make- looking for a neurologist, later!