Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Trying to get off Dilantin

Thu, 01/26/2006 - 11:28
I'm trying to replace Dilantin with some other med that will have less side effects. The doctor tried Lamictal and it didn't work. Then I found out it wasn't really indicated for grand mal seizures. !#%!! Now my doctor wants to try Depakote. Can anyone give me some insight on changing drugs? Should I just stick with Dilantin because all these drugs have side effects that are just as bad? Thanks

Comments

Re: Trying to get off Dilantin

Submitted by skilur on Sun, 2013-05-26 - 16:27
I am on 3000mgs of keppra & 300mgs of Dilantin The dr took me off 100mg of Dilantin 4 days ago I had a panic attack & could not sleep so I took the 100mg Dilantin I hate the way Dilantin makes me feel....so I am goona try again next week I did not have a seizure just felt nervous & scared & no sleep Can someone advise me Plz help

Re: Trying to get off Dilantin

Submitted by jubatum on Sun, 2009-02-22 - 23:30

I was on dilantin for 9 years.. went off of it and took lamictal for two years.

the dr said the side effects of dilantin are ..well you know, harsh.  Lamictal made me gain weight, get acme and want to kill myself and I have NEVER been that way.  If you ask me those are worse.  All the side effects i had were cosmetic.. teeth. some hair.. whatever.. stuff that could be helped.   I'm not sure if lamictal was originally intended for epilepsy or bipolar.. but it made me nuts.

I'm switching back to dilantin.  IAs of yesterday... I say pick your poison.  If you want to try others do it up! but make sure you assess and take into consideration two things... the effectiveness of the drug (lamictal didn't work right?) and secondly the side effects you are willing to put up with for the effectiveness of the medication.  they both worked for me and i am not willing to try a new one (at this time in my life) so i'm choosing the lesser of two evils.

but nothing is permanent.  You could always try depakote.. and go back to the dilantin if it doesn't work/side effects are worse. ?

I'm not sure if I even helped but if you try depakote good luck!!

Heath

 

I was on dilantin for 9 years.. went off of it and took lamictal for two years.

the dr said the side effects of dilantin are ..well you know, harsh.  Lamictal made me gain weight, get acme and want to kill myself and I have NEVER been that way.  If you ask me those are worse.  All the side effects i had were cosmetic.. teeth. some hair.. whatever.. stuff that could be helped.   I'm not sure if lamictal was originally intended for epilepsy or bipolar.. but it made me nuts.

I'm switching back to dilantin.  IAs of yesterday... I say pick your poison.  If you want to try others do it up! but make sure you assess and take into consideration two things... the effectiveness of the drug (lamictal didn't work right?) and secondly the side effects you are willing to put up with for the effectiveness of the medication.  they both worked for me and i am not willing to try a new one (at this time in my life) so i'm choosing the lesser of two evils.

but nothing is permanent.  You could always try depakote.. and go back to the dilantin if it doesn't work/side effects are worse. ?

I'm not sure if I even helped but if you try depakote good luck!!

Heath

 

Re: Trying to get off Dilantin

Submitted by skilur on Sun, 2013-05-26 - 16:36
I am trying to get off 100mg of Dilantin I take 3000mg od keppra & 300 mgs of Dilantin the dr took me off 100 mg of Dilantin 4 days age I had a bag panic attack no seizure but scard & nausea no sleep...I hate Dilantin can someone help me Im gonna try again but im scared  Plz advise me thx

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.