Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Second Time around on Topamax....

Mon, 04/23/2007 - 03:01
ok so i been on topamax b4 and the first time didn't go over so well as i would of liked... I had too much weight loss, couldn't sleep, stress, and couldn't focus. so i switched to depakote... But this time is going really well! better than i expected so far (unusually strange?). I been getting cotton mouth tho, decreased sweating (which makes me tired more easily), weight loss (not as much as i would like but hopeflly more), hard time waking up in the morning, mood swings sum times, but sum times very good and happy moods... Maybe the first time i went on topamax the dsg was jst too high for me so this time its just right? i'm hoping, cuz i feel really good on it now... and i really dont want to change back to depakote cuz it made me gain alot of weight, so we'll see how it goes. IF u u know ne thing about topamax, please let me know. thanx loula.

Comments

Re: Second Time around on Topamax....

Submitted by bex on Wed, 2007-04-25 - 14:38
Loula, have been on this for a few months (tried lactimal and sodium valproate) and and am now increasing to 300mg, main probs I've had are memnory and concentration (this was worse when on 2 aeds), pins and needles which has improved since I've been eating a banna a day - somthing to do with the potasium which was a tip from this site. I have lost weight so I just eat little and often even though I don't feel like eat and will have to see what happens here now I'm increasing dosages. I am very tired. It did make me have a lot of side affects at first but has reduced my partials from 9 a month to 3 and reduced my migraines from 12 to around 7. I do use lists for everything and am mentally slower than I used to be. Good luck.

Re: Re: Second Time around on Topamax....

Submitted by loulagirl7 on Sun, 2007-04-29 - 01:56
ya im doing really good on it which is a complete surprise this time considering the first time it seemed like i got all the bad side effects.... except i did experience pins n needles, but that does go away after a while. umm i just switched to my higher dsg, and i am starting to not eat alot, like only a meal or less a day.... or soemtimes ill try to eat more. so im just startin to lose weight. ya u do experience memory lossage, or u do get slower, thats why its nick name is dopamax lol.... just it hits some people harder than others and since its my second time on it i think my bodies more use to it... but good luck! LOula

Re: Second Time around on Topamax....

Submitted by nzlee on Wed, 2007-04-25 - 19:54
Hi there loulagirl, I have been on Topamax since Oct and have just increased to 400mg. I have found the T good for me. I have lost weight too, but I have maintained to a good level now. I find that if I eat a good protein diet it helps with the weight. When I cant eat in the morning I have a protein drink in the morning and that gives me a kick in the morning. The only time I had trouble with the T was when I was increasing on the drug, and when I stablised I was fine. I too had trouble with sleep especially around the time of my period, so I have to take Frisium around that time or I have seizures. I have night seizures once or twice a month. You have to give T time and the longer you are on it the better it gets.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.