Meds worsen seizures?

Topamax also made my seizures way worse and more often. I have had seizures since I was 10 and didn't start meds until I was 23 and I never came close to having a gran mal until I started the meds, imagine that! I am still on the meds, but I am trying out alternative methods as well.

Anytime there is a change in the medication funny things happen. This just seems to make sense. If the medication makes some change in the way a seizure does or does not occur, it seems to make sense that they can get worse as well as better. I believe that I have had this experience with a couple different medications. I'm not sure that this means that the medication will not work. Being on a stable dosage is important, and finding the right dosage can be a very difficult, long process. It could also be that your son is having problems just because he is having problems regardless of the medication. His seizures may just be getting worse. Make sure to go to an epileptologist and have him talk as clearly as possible about the way he feels (on and off the medication). He should express any frustration or concern he may have. He may have to repeat himself a gazillion times to get his point across. I have found that epileptologists know what I'm talking about when I tell them what is wrong, regular neurologists don't. Epileptologists are also much better about helping with medication. Regular neurologists just want to add more meds. I read your blog entry. I have been having seizures since I was about 9, but was not diagnosed until I was about 12. When I was diagnosed I got some care for a few years. After that I got almost none at all until last year, I am 32. Until last year I had never seen an epileptologst. I would also plead with you to get other help for him, like neuropsychological testing, especially if he has any trouble in school, or for whatever problems he might have. High school was misery for me, and much of college was also extremely difficult, even though my seizures are mostly controlled. Seizures are not the only problems people with epilepsy face. For me, I had depression, side effects, and cognitive issues. I didn't have any help with this. Don't force him or anything, just make sure he isn't struggling alone, when there might things that can be done to help him out - an epileptologst and a team of doctors at an epilepsy center can help out with identifying these things. I would just add encourage him to be strong, optimistic, and proactive.