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Hi I'm New!
Wed, 04/18/2007 - 20:27Topic: Living With Epilepsy - Youth
Hi everyone! I'm meowpuppy and i am new to this site. I have a seven-year old son who has epilepsy. He takes one teaspoon of Trileptal twice daily. This controls his seizures totally. We have noticed, however, that the medication seems to cause him to be clumsy, slow, and kind of, well, mentally challenged at school. It takes forever to complete the most basic homework assignment. We must explain things over and over again. Don't get me wrong, i am so blessed that his seizures have stopped, but i wonder if there might be a medication which can stop the seizures without causing such a mental drain. His neurologist says that 2 teaspoons a day should not cause this trouble but i know this is a different child then the intelligent boy i first sent off to school. Does anyone have any info on this phenomenon?
Comments
Re: Hi I'm New!
Submitted by Shar on Tue, 2007-05-01 - 11:59
Hi Meowpuppy,
My 9 yr old daughter has been on trileptal since April 2006. She was doing fine up until nov. 2006. Now she is having a tough time in school, homework is a nightmare, very angry and aggressive. Her neuro seems to think it is the trileptal, along with still having partial seizures. He is going to wean her off the trileptal and put her on something else because of this. I definitely think its the med but I will see how she is on something else.
Good luck!
shar
Re: Re: Hi I'm New!
Submitted by tchaide05 on Wed, 2007-05-02 - 20:59
my daughter was also on trileptal until last week, and I have noticed a big change in her since she has stopped taking it, lauren started it in Feb of 2006 and by Sept of 2006 she started having absence seizures, trouble in math, behavior problems, aggressive, and angry also.
Since she has stopped she is finally getting back to being my little girl again, now she is on just keppra, and so far I am not noticing any major side effects. Would love to hear from anyone else who has had this kind of experience with trileptal.
Some advice, I can give you, is make sure your neuro listens to your fears and does not just blow them off, as if they dont' exist, I made that mistake, and now wish I had gotten stubborn sooner.
Mom to Lauren age 9,
Re: Hi I'm New!
Submitted by DM on Thu, 2007-04-26 - 22:53
Hi Meowpuppy, You have just described my 8 yr old son. I completely understand!! My son is on depakote & lamictol. My Nuro said the samething regarding the meds. I had my son tested at medical university and they couldnt diagnose him because of the meds he was taking. They otherwise would have diagnosed MR. Which is not the case I am sorry I have not yet found out the phenomenon. But I can say I have talked to a few people here on this site and it isnt uncommon for kids who suffer from epilepsy to have those symptoms. This site has really helped me. Its helpful to talk to other parents who are going through the same things. Feel free to email me..(click on DM below.) Take care and good luck in finding the info you are looking for. MOM of DM