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trying to live with this

Sat, 08/26/2006 - 00:57
i was diagnosed with epilepsy a couple of months ago. for awhile i wasnt doing so well. my seizure werent being controlled, i lost my job, i couldnt drive, and all my friends now made fun of me. i am 17 and had my first grand mal seizure at school last year. it was the most embarrasing thing ever. i came back to school this year and now everyone wont stop talking about me or making fun of me. i am getting so angry about everything latley. i am in my senior year and still cant drive. i was supposed to get my liscense back in a month but i just had another seizure(in my sleep) so now i am back to where i started. i dont even know what to do about it anymore. i cant even remeber to take my medicine sometimes. my parents do the best to remind me but they cant always be there. i go to school everyday worrying if i am goin to have another seizure. just so more kids cant make fun of me. even the teachers call me tweaker..or something like that. its very embarrasing and i am getting to the end of my rope. i am going crazy.i want a normal teenage girls life. like all my friends have....they all drive around go out stay up all night on weekends. i cant even go to my fucking school dances and i am so pissed off. i dont know what to do...everyone thinks its just some big joke..but i am really upset by it. i just want to tell everyone to fuck off and just be average for a day. nobody understands me. i am scarred lonely upset and i just want to scream or punch something. i dont know what i did to deserve this but it keeps me up thinking and crying getting upset all the time......i need some help...anybody who wants to talk would be greatly appreciated..i feel like if i dont do something i will just say fuck everything

Comments

Re: trying to live with this

Submitted by Cathy_C on Sat, 2006-08-26 - 07:51
Staci, I want to share something that I live my life by. I have always said "I have epilepsy, but epilepsy doesn't have me!!!!!!!!". As hard as it may be at this point to think that try your hardest to. Life will get better. I was always in a big pity party. I had really had small auras that I didn't know what they were until I was diagnosed with the epilepsy at age 30. Before then I did graduate from High School, went to work as a CNA in a nursing home. Married and had 3 children, went on to Medical school and graduated from there. Shortly after going thru Medical school I was diagnosed with the epilepsy. After deciding not to take a chance in working in the medical feild afraid of what I might do during a seizure to a patient I went to work as a Vet tech/ Kennel Manager. I wasn't in a very good marriage at the time and finally divorced and moved back to Maine from Texas to live (Maine being my home). When I got home, 6 months later my baby brother was killed in a motorcycle accident. So to say the least I felt pretty crappy. I felt life just closing up on me. Then in 2000 my life changed for the better, I remarried a man who truely loves me and stands beside me, I have my license back and am working part time in a Medical Research Laboratory and am going for Brain Surgery for my seizures on October 12th. I will be going to work full time after the surgery and I went to a job interview yesterday and they told me good luck with the surgery and to call them as soon after the surgery is done and I have recovered. So I have a job in the Medical Research feild that I have a passion for waiting for me. I say all of this to prove a point. I turned my thinking from the negitive to the postitive and things totally changed for me. Hun, don't let the epilepsy take your life away from you. I found that your true friends will stand by you always and it is best to explain exactly what it is. Please take your meds, it you have to buy a pill holder that you can place by your tooth brush and take them when you brush your teeth. The medication is the first step to stopping the seizures. Ask your neurologist is you may be a candidate for the brain surgery. Who knows what he/she will say. I would definately lay off drinking. Put the positive attitude in effect and put your health in as important to you. You may still be young and are thinking there is no hope at the end of the road, but from experience from a bad past with an epilepsy history you can come through this. You have definately come to the right spot. There are so many nice people here who are so willing to talk to you and who can support you in your bad days. There are many answers here to be found. Just keep your head up and keep saying and reminding yourself the saying I told you at first. "I have epilepsy, but epilepsy doesn't have me" I wish you the best of luck and am here if you need to talk to someone. If you wish to you can add me to your friends list and you can IM me whenever ya see me online. God Bless you and I will keep you in my prayers. Life will get better. ((((((HUGZZZZZ)))))) Cathy

Re: trying to live with this

Submitted by jamie crowell on Tue, 2006-12-05 - 21:16
I know exactlly how you feel staci17 I am age 44 and everyday I feel guilty because I have to depend on others all the time. I can't and will probably never be able to drive a car because of this I feel confined or caged in because I still have to live with my parents so they can take care of me. I have anywhere from 4-6 grandmals a year and about 5 years ago I started to have small tonic -clonic seizures almost daily.Sometimes I would become incontinent while I would be at work. I had to start bringing a change of clothes each day.I take 22 pills a day and i also have a agal nerve implant yet I still am having seizures. I think the best advice to give you is just hang in there and don,t let what other people say get to you.you should also let your principal of your school know what the teachers are saying because they most of all should not make fun of you. they are there to help you not hurt you! I hope everything goes well fo you.

Re: Re: trying to live with this

Submitted by grego on Tue, 2006-12-12 - 19:35
Hi, your situation sounds very familar- I was in teh same situation you are in. I wish I could give you some magical advice, but I can't/ Perhpas you have to realize "those people" who make fun of you and your seizres aren't really the kind of people you'd like for friends anyway, right. Congratulations you are a senior in H.S.. What are your plans after school? More schooling? I have found fellow students/ instructors are a lot more understanding abo ut epilepsy in secondary eduction. If you continue education, your epilepsy can help you get additional assistance when taking tests,notes,etc.Because epilepsy is a disability, the educational system has to help you with accomodations. You mentioned the " male &femal;e friends driving around and having a good time" But perhaps their "good isn't as good as you imagine. Besides, you seem to be a more serious person,concerned withmore important things than " having a good time" Best of luck to you. I know you can make it (ok, I know it wouldn't be esay, but I made it) Instead of being angry at " immature individuals around you" why not use that energy to plan your future. keep in touch, Grego

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