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Temporal Lobe Epilepsy blowing up at work
Sun, 05/20/2007 - 13:45In November 06 I had a VNS implant. It has helped with seizures. But I've been blowing up at work on a regular basis and it is getting worse. Saw my neuro. yesterday and he said the VNS is stopping the seizures so they are building up like they do in TLE and I blow. I used to do this when I was young and then I'd have a seizure. He wants me to take Topamax to replace Carbatrol which I've taken for 30 years and keep taking the Trileptal. Anyone else relate with this? Thanks, Jean
Comments
Re: Re: Re: Re: Re: Re: Re: Re: Temporal Lobe Epilepsy blowing u
Submitted by spaznurse on Thu, 2007-06-07 - 19:52
You mean mine?Haha! You can read my blog for a birds eye view of MY crazies LOL!!
Well I'm not sure how much of mine are seizures, or drug interactions with my allergy meds, etc at this point..haha! I do know I am feeling much better since taking Melatonin and simply SLEEPING for several nights straight...so lovely! I will see my neuro soon and we shall talk in depth.
I do know that folks who do NOT have damaged temporal lobes can have psychiatric side effects from Topamax, so it is not the drug for everybody. It is used for other things than just E and this is often where people get into trouble (migraines, bipolar disorder mood stabilization and such)
It is hard to return to work I know. people say they are on our side but human nature as it is...actions speak louder than words and at work, I trust no one, as harsh as that sounds.
Be well my friend!
if you're interested, do a search online and some websites wil come up where you can read some firsthand accounts of people's experiences with topamax...some of them, however, are not seizure patients.
"If you can laugh at it you can survive it'---Bill Cosby
Spaznurse
Re: Re: Re: Re: Re: Re: Re: Re: Re: Temporal Lobe Epilepsy blowi
Submitted by Raegan on Tue, 2007-06-12 - 19:37
I'm new here and appreciate a chance to interact with others who share these problems and challenges. Yes; I"m new here but not to having seizures they've been a unwelcome companion of sorts for over forty years. As a child I would explode in front of my dad; when he got loud it made my parents really confused hearing the rants that came out of me.I also stared alot in school and would scream if someone disturbed. Then;Later in life it was the typical things everyone has spoken of here; and it haunted me because I never really remembered all I did or said. Eventually this transformed in my thirties to a series of seizure types, one of which caused me to fumble with my clothes and the things around me; or walk aimlessly not rememembering what happened. I was in a memory free dream state at times had vague "pictures" of me undressing not being able to stop. This horrified be and my friends but went on without a remedy for years. Those close to me always made sure I was "taken care of" and didn't get "out of control" in public.I was protected alot but eventually became disabled from these seizures.Things had become so bad I was even arrested for being "indecent" but my condition came out and it was dismissed by the judge.
I hope I wasn't to long winded because just wanted to share that my neuro found a way of "balancing" neurotin and dilantin which frees me from these seizures now....even eliminated my outbursts too. Just food for thought........hope it helps someone Raegan
Re: Re: Re: Re: Re: Re: Re: Temporal Lobe Epilepsy blowing up at
Submitted by bex on Thu, 2007-06-07 - 12:13
Spaznurse, am also feeling bit wired myself right now not sure whether its the whole return to work thing - can you expand on the psychiatric side affects at all... Keep smiling Bex