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Temporal Lobe Epilepsy blowing up at work
Sun, 05/20/2007 - 13:45In November 06 I had a VNS implant. It has helped with seizures. But I've been blowing up at work on a regular basis and it is getting worse. Saw my neuro. yesterday and he said the VNS is stopping the seizures so they are building up like they do in TLE and I blow. I used to do this when I was young and then I'd have a seizure. He wants me to take Topamax to replace Carbatrol which I've taken for 30 years and keep taking the Trileptal. Anyone else relate with this? Thanks, Jean
Comments
Re: Re: Re: Re: Re: Temporal Lobe Epilepsy blowing up at work
Submitted by bex on Tue, 2007-06-05 - 12:40
One thing to add... 2 aeds really didn't agree with me maybe because I'm little but my body couldn't cope and I just couldn't function. So go slowly my friend! Take care Bex
Re: Re: Re: Re: Re: Re: Temporal Lobe Epilepsy blowing up at wor
Submitted by spaznurse on Tue, 2007-06-05 - 18:30
Thanks good to know. I just want to be able to sleep and quiet down this brain a litle ya know?I know topamax can be very very good but is notorious for its psychiatric side effects and perhaps it has just turned on me. It cannot be good for the E for me to be this wired. Perhaps i need some more EEG studies..we shall see what she says when i see her 9my neuro) Thanks again for your concern Bex!
"If you can laugh at it you can survive it'---Bill Cosby
Spaznurse
Re: Re: Re: Re: Temporal Lobe Epilepsy blowing up at work
Submitted by spaznurse on Sat, 2007-06-02 - 14:22
This sounds just like me also jJean and Bex. Thanks for the good input Bex. Will ask my neuro about a second AED or?? Hugs to both of you..so glad to have found this forum and others who can empathize with what we go through. Best wishes. "If you can laugh at it you can survive it'---Bill Cosby Spaznurse