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Self-Cure (albeit Temporary) For Myself...

Sun, 09/24/2006 - 02:51
Hi, My name is Mike, I'm 22. I live in Iqaluit, Nunavut. When I was a young guy, my mom had epilepsy (still does) and would constantly FrEAK me out at Bed & Breakfasts, home, etc.. Anyways, when I turned 19..I learned it was genetic. THANKS MOM! real great! (love her lots though, she's my mom!) Anyways.. I was working Night Shifts at Tim Hortons at the time period when I had my first seizure.. I was at my twin brother's friend's house. I was really, really tired..still living on the street at the time and just looking for a place to sleep that was warm. Well they were watching a movie and I wanted to sleep on the couch. And one of the girls there put snow down my shirt, while I was sleeping and I woke up so angry and felt a rigid tension in my body, that I would normally associate with anger, but this was different.. I got up and yelled at her and everyone got upset with me for that, but my brother told me to sleep upstairs in her mom's bed.. her mom said it was fine..so I went upstairs to sleep. I climbed into the bed and after about two minutes the tension that I felt from before was still there..it was Sooooo Uncomfortable!..Then in a FLASH my body got tight and my fingers locked up like I was grabbing a basketball in each hand and my toes pointed out in another sports related LEG EXTENSIONS technique.. My jaw opened and then froze and I felt my eyes roll back.. When I got my first glimpse of where I was afterwards, I was looking back at the house and I was being put backwards into an ambulance..I fell asleep after that, and woke up being wheeled into the hospital.. Anyways..I really enjoyed the orange juice and cereal in the morning..Canadian Hospitals Rock! About a year after that passed I discovered a technique almost by fluke of keeping myself away from seizures.. I can't find anyone else with the ability to do this, as it almost counteracts traditional cures! it's almost a cause for some! What I do is when I feel "Twitchy" or "Jumpy" as I call it when I feel like I'm going to have a seizure I turn on a light, or the television, or go on the computer, and as long as its not totally dark when I'm sleeping I'm fine. I also find I get really "Jumpy" when I'm really tired... Is anyone else like this? Does this work for anyone else? Is this even epilepsy? What Do People with this form do?

Comments

Re: Re: Self-Cure (albeit Temporary) For Myself...

Submitted by spidexplorer on Mon, 2006-09-25 - 00:42
Hey Lisa! OMG! I just watched family guy today..Peter bought a tank! how cool is that..does anyone else think that Peter is way too hard on Meg? Oh wait! I want to say thanks alot! It's so awesome to know other people out there are just like me! (when talking about mental conditions it might not be best to use that last expression, not really positive) ...thanks for giving me something to think about everytime I'm going to have a seizure..I love that there is a name for it! I'm a *MINDFREAK!*.. I have total Neurofeedback control, and I never felt more alive! ..keep it together, guy.. Thanks again, Lisa! Oh yea..this is for you..the guy/girl reading through page after page trying to find solice..*BREATHE* YOU ARE A MEMBER OF A TOTALLY EXCLUSIVE CLUB! WE ARE THE DREAMERS OF DREAMS! WE SHAKE PLANETS! KEEP IT TOGETHER! *BREATHE*

Re: Re: Re: Self-Cure (albeit Temporary) For Myself...

Submitted by angel_lts on Mon, 2006-09-25 - 08:07
Hey spidexplorer, You are so funny lolol You say you are more alive. You act more alive even online :) Here is the technique in case someone asks. Yes there is a name for it, Diaphragmatic breathing!! Breathing Technique to help Seizures http://www.epilepsyhealth.com/deep-breathing.html Diaphragmatic Breathing http://www.swamij.com/diaphragmatic-breathing.htm No really, Neurofeedback is a mind training thing for all sorts of problems. There is also something call Biofeedback. I prefer Neurofeedback because they do it a different way. http://www.eegspectrum.com/ Exercise, breathe in and breathe. 1-2-3-breathe teeehhee take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Re: Re: Self-Cure (albeit Temporary) For Myself...

Submitted by slhmurphy on Mon, 2006-09-25 - 13:13
Hey guys! First, I gotta get this out of the way. While I know you meant no disrespect, please don't use the N-word Mike. Second, I'm intrigued. I know that to some degree we can try to control our bodies. I have wondered if this was the case, cause when I "give in" to the seizures they seem to last longer. When I try to focus my way out of it, they don't last as long. Do you think this sounds reasonable? To answer your previous question Mike, my pattern has been non-existant lately. I didn't even think about seizures before May of this year. I still am not diagnosed, but something has definately changed this year. Whatever these episodes are, I had seven of them on Saturday. I had a couple yesterday, and one so far today. Prior to this week they have been actually increasing in frequency. They also change from week to week. They appear to be mostly simple partials, with various types of symptoms ranging from autonomic (breathing/heartrate) to psychic (feeling as though I am detached from my own limbs and have no control over them). Lately however, they feature staring and then an overwhelming feeling that forces me to close my eyes. Weird. Fortunately, I go into the hospital next Monday, so all shall be revealed soon...I hope. Sam P.S. "No more sprinkles! For every sprinkle I find...I shall kill you!"

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