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PLEASE HELP What's the next step?

Fri, 11/24/2006 - 13:37
Hello everyone! This is all new to me so please understand that I have alot of questions. I went to my neuro this week and he told me that my jerks that I've had all of my life are Myoclonic sz's. I use to jerk about once every 2 weeks but now I do it up to 16 to 20 times a day. What is causing this? Will I someday have the big GM? I had an EEG this week with no results yet. My sister is a nurse and she told me yesterday that I better be careful of what I tell my Dr., he could take away my (GA)DL. She said that if I'm just exploring the fact that I have these jerks they could really cause me trouble. If I could live with them (jerks) and they don't interfere with my everyday life just reduce the triggers and deal with them. I'm really scared, here is what I do: It affects my upper body. My head will usually move from side to side (ear to shoulder) and I'll have like a shiver go down my spine. My hands usually move too and I make a sound (now) like I'm being steped on. It's kind of like a dog shaking water off, I'll start at my head and everything will move head, soulders, arms, and stop at my waist. Does anyone else have this? I also have times when I want to stare while I'm driving, but I'm in full control. Should I still go to the Dr. and follow up or just forget the whole thing? I haven't read of anyone yet that has had my symptoms. I broke a glass the other day at work, and that is what made me go to the DR. PLEASE HELP ME!!!!

Comments

Re: Re: Hi Mary. Thanks for the

Submitted by happycat2 on Sun, 2006-12-10 - 22:35
Hi Mary. First, thanks for the thanks, and good luck with the test results. It's really nice to be appreciated. You know to me, its what support boards, or forums are about, offering support, or a friendly word when needed. I'm sorry to hear of your latest issues, and the way you feel. I guess with everything you have been dealing with it can feel that way, as if the world is coming crashing down around you. How in the world you are coping with everything else going on is just amazing... Seizure patterns changing, testing, now this to deal with... An alarm went off when you mentioned ringing in your ears, I had thought tinnitus could be happening here. Tinnitus is the perception of ringing, buzzing, roaring, or other noises in the ears or head – when there is no external source of the noise. http://www.ata.org/ As I have stated before, am no doc, or neuro or want to be, just Carpal Tunnel, Musculoskeletal Disorders also rang a bell after reading what you wrote. You know anything about it, or done any research on it while you were waiting? Hang in there, stay positive and upbeat, it helps. Cat. "Many false prophets are gone out into the world." 1 John 4:1

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