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Fri, 03/31/2017 - 13:50I am looking for other people who may experience nocturnal seizures. My long term boyfriend (still waiting for that ring!) had his first seizure in February 2016. He went for EEG and CT scan and everything came back fine. The doctor told him that everyone is ok to have one seizure in their lifetime. This January he had his second one (11 months later), and the doctor has scheduled more tests but also diagnosed him with nocturnal epilepsy, offered him medication however he denied it. This morning (2 months later) he has had his third one. This time we woke up to use the washroom and fell while doing so into a grand mal seizure. All three times have been grand mal. The first he was dead asleep. This always happens in the morning. The second time he had just got up to use the washroom and layed back down to sleep and it occurred around 5 minutes after he was sleeping. The third one, this morning, he was standing up peeing, and fell (thank god didn’t hurt his head).
He doesn’t remember getting up to use the washroom. My question is medication, now that it seems the gran mal are occurring more often, we should really consider the medication. I am wondering what people who suffer from nocturnal seizures only take and how it helps them? Any insight would be helpful, I am an emotional wreck and feel so helpless.
Thank you and I appreciate anyone’s support and advice.
Comments
Thanks for your response. How
Submitted by sarajessie on Mon, 2017-04-03 - 12:57
Thanks for your response. How do you cope? I find myself terrified for him to even be in the washroom on his own, which is causing more issues between the two of us. Hes so stubborn that he wont quit his job (he works on roofs) . He doesn't seem to be taking it as seriously as I am. I am terrified for him every day that he goes to work. Is there a possibility that the medication will create more seizures for him? Do you recall how many seizures you have while sleeping? Do you ever hurt yourself badly? The last seizure he had on friday he was standing up (just woke up but doesn't remember) and he fell into a wood shelving unit and scrapped up his arm pretty bad with bruising. I happened to be running late for work that morning (THANK GOD) or else I wouldnt have been there to help protect his head. I counted this one this time and it was just over a minute. He could have really hurt himself if I wasnt there. Im just so worried about him Its literally breaking me down and on my mind all day that i cannot even focus.
How often did he keep having
Submitted by sarajessie on Mon, 2017-04-03 - 12:57
How often did he keep having the seizures? and also I am curious if they are still only in his sleep?
How often did he keep having
Submitted by sarajessie on Mon, 2017-04-03 - 12:55
How often did he keep having the seizures? and also I am curious if they are still only in his sleep?