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Little Known Info about Partial Complex Seizures

Tue, 08/21/2007 - 02:15
well i now know that neuros and epi spec dont know everything, after my big scare around 2am or what ever it was i dont know really. i had a partial complex when i went to get a migraine pill and then when my hubby went to look for me i colasped nto his arms. he laid me on the floor and i wasnt breathing and my hubby woke my youngest son who knew cpr. he couldnt find a pulse, and did cpr and i started coughing ,then i would stop breathing and he blow in my mouth and and i cough again,so by the time the emt were ther i was i just stopped breathing a few more times and then they took me to the hospital. this is what i was told, i woke up as they were unloading me at the hospital, very confused. of course they checked with my neuro who said it wasnt a neuro problem, and they checked with another neuro at there main hospital in town and he said not a neuro problem. admited, about 8 am internist came by talked to me said neuro problem. sent home that evening. talked to cardio doc on call on sat said need to come in on monday and see cardio doc i went into the cardio doc's, had a ekg. was ok. my blood work from 3 weeks ago was good, the ecko of my heart from 3 weeks ago shows no change in the leaky valve. he also said we have got to get my seizures controled better and was concerned that i was seeing a neuro that was working hard on controling them, i said yes, he was a epi spec that works on uncontrolable seizures. he said well he needs to work harder, after all the seizures you had here when you were in for your stress test, and now this. he said he was very concerned. now for the surprizing info, my cardio doc told me that at the end of a partial complex seizure, it is not uncommon for patients to stop breathing. he was saying that the best thing to do is lay the person down and wait for them to start to breath again, in most cases people will begin to breathe within a minute. if it goes past, then blow air in the mouth and check for breathing. repeat until breathing. if cant get breathing started call 911. and continue breathing into mouth. he said that the pulse was there but to weak to feel. this is all news to me, so i looked it up on th internet and found a small amount of info about this very thing. it seems it is not something they want us to know, i found the most info on a page on pediatrics and partial complex seizures and the importance of having oxygen available. well i found a small piece on adults too, stopping breathing with partial complex seizures. idecided to post this under adult issues as well since it is an adult issue that there is little info written about it, its mostly all pediatric, but my cardiologist said it is not uncommon in adults who suffer from partial complexes that are not controled. i hope everyone passes this info on. banffgirl

Comments

Re: Re: Re: Re: Re: Re: Re: Little Known Info about Partial Comp

Submitted by Roxanne D on Mon, 2007-09-03 - 20:32
I have complex partial petetit mals and don't think that I have stopped breathing while they occur, I just shake my arm for a few seconds. I do have a fast heart rate, that they had to give me a shot for, I forgot the name of the med. Now it's under control. I found out from a cardio doc that I have also an extra wire not only in my head but in my heart that causes my heart to increase the rate. I'm all wired up, not only during tests. HA,HA! Thinkg about you, I hoped you find out why. Roxanne

Re: Re: Re: Re: Re: Re: Re: Re: Little Known Info about Partial

Submitted by banffgirl on Thu, 2007-09-06 - 09:43
roxanne itis amazing all we go thrui. my cardio is frustrated cuz he cant do a stress test since i am not under control anymor and he had to explain to me why i stoped breathing which he was very knowlegable about e and hes my cardio doc. my epi spec just dismissed it all. so i am mad at him. scared my hubby and son to death. banffgirll

Re: Little Known Info about Partial Complex Seizures

Submitted by Believe on Thu, 2007-09-06 - 15:53
I find this really interesting information! Why? Because I also have Mitral Valve Prolapse (MVP). I used to get horrible migraines, but hardly ever now (knock on wood). So your doctor thinks its heart related and nothing to do with seizures? I have no idea what "type" of seizures I'm supposed to have. I have only had two. Both times I collapsed and lost consciousness. My tests all came back normal. The 2nd seizure (4 months ago) I also stopped breathing. It terrified my husband! He really needs to take a CPR course! After that, I was wiped out for a good solid week. I was physically exhausted. I get confused by all the different types of seizures. I just know that gran mals are the ones where you lose consciousness -- and that is what I did. Please keep us posted as to what you learn. My family has some serious heart issues and if it is possibly related to this, I would love to know what to discuss with my doctor! Thanks for your input! Good luck and God Bless! ~ Believe

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