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Little Known Info about Partial Complex Seizures

Tue, 08/21/2007 - 02:15
well i now know that neuros and epi spec dont know everything, after my big scare around 2am or what ever it was i dont know really. i had a partial complex when i went to get a migraine pill and then when my hubby went to look for me i colasped nto his arms. he laid me on the floor and i wasnt breathing and my hubby woke my youngest son who knew cpr. he couldnt find a pulse, and did cpr and i started coughing ,then i would stop breathing and he blow in my mouth and and i cough again,so by the time the emt were ther i was i just stopped breathing a few more times and then they took me to the hospital. this is what i was told, i woke up as they were unloading me at the hospital, very confused. of course they checked with my neuro who said it wasnt a neuro problem, and they checked with another neuro at there main hospital in town and he said not a neuro problem. admited, about 8 am internist came by talked to me said neuro problem. sent home that evening. talked to cardio doc on call on sat said need to come in on monday and see cardio doc i went into the cardio doc's, had a ekg. was ok. my blood work from 3 weeks ago was good, the ecko of my heart from 3 weeks ago shows no change in the leaky valve. he also said we have got to get my seizures controled better and was concerned that i was seeing a neuro that was working hard on controling them, i said yes, he was a epi spec that works on uncontrolable seizures. he said well he needs to work harder, after all the seizures you had here when you were in for your stress test, and now this. he said he was very concerned. now for the surprizing info, my cardio doc told me that at the end of a partial complex seizure, it is not uncommon for patients to stop breathing. he was saying that the best thing to do is lay the person down and wait for them to start to breath again, in most cases people will begin to breathe within a minute. if it goes past, then blow air in the mouth and check for breathing. repeat until breathing. if cant get breathing started call 911. and continue breathing into mouth. he said that the pulse was there but to weak to feel. this is all news to me, so i looked it up on th internet and found a small amount of info about this very thing. it seems it is not something they want us to know, i found the most info on a page on pediatrics and partial complex seizures and the importance of having oxygen available. well i found a small piece on adults too, stopping breathing with partial complex seizures. idecided to post this under adult issues as well since it is an adult issue that there is little info written about it, its mostly all pediatric, but my cardiologist said it is not uncommon in adults who suffer from partial complexes that are not controled. i hope everyone passes this info on. banffgirl

Comments

Re: Re: Re: Re: Little Known Info about Partial Complex Seizures

Submitted by kaidi on Sun, 2007-08-26 - 10:40
I will let you know for sure!! Kaidi

Re: Re: Re: Re: Re: Little Known Info about Partial Complex Seiz

Submitted by kaidi on Thu, 2007-08-30 - 07:31
Well, the appt was interesting, the new doc is not convinced I am having seizures, he wants me to go in on Tues for a week long VEEG with a heart holter moniter on at the same time because he is worried about a strange sounding murmur I have. I have had a couple ECGs and EKGs and they always came out normal, but he really wants to see what would happen if the holter moniter caught an episode in real time. Since I will have both the EEG and the holter on at the same time we'll see which one registers something!! I'll let you know. I think it's interesting that they sent you to a cardio as well, I feel doomed to be a ping pong ball between the two! Kaidi

Re: Re: Re: Re: Re: Re: Little Known Info about Partial Complex

Submitted by banffgirl on Thu, 2007-08-30 - 10:24
best of luck on your test, i know from my cardio doc my murmur comes from a leaky heart valve and it doesnt always show up on ekgs, only rarely if it happens that the blood it back washing in the wrong direction thr the valve at the time of the ekg. it doesnt do it all the time so they do a eckogram of my heart to see and here the valves defect. it is amazing though when you get more info from a cardio doc about e than your epi spec. banffgirl

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